Websites
The Mast Cell Disease Society provides the links below to assist you with information on a variety of topics that may be relevant to your interests. While we hope that they may be helpful, we do not take responsibility for any of the content that is conveyed once you have left our website.
AAAAI Anaphylaxis Emergency plan
AAAAI Asthma Action Plan
American Academy of Allergy, Asthma and Immunology
American College of Allergy, Asthma and Immunology
American Academy of Pediatrics
American Society of Hematology
American Academy of Dermatology
National Organization for Rare Disorders
Mastokids-support organization for children with pediatric mastocytosis and their families
Global Genes-Allies in Rare Disease
European Competence Network on Mastocytosis
https://ecnm.meduniwien.ac.at/
Rare Disease Legislative Advocates
Maryland Non-profit Organizations (TMS is incorporated in Maryland)
https://marylandnonprofits.org
FARE Food Allergy Research and Education
Food Allergy and Anaphylaxis Connection Team FAACT
http://www.foodallergyawareness.org/
Allergy and Asthma Network.org
http://www.allergyasthmanetwork.org/
American Partnership for Eosinophilic Disorders (APFED)
Asthma and Allergy Foundation of America AAFA
Campaign Urging Research for Eosinophilic Disease (CURED)
Immune Deficiency Foundation (IDF)
International F-PIES Foundation I-PIES
Patient Power
Patient Power is devoted to supporting cancer patients, care partners and other loved ones through education and advocacy—to get the right treatment at the right time working with the right healthcare team.
- https://patientpower.info/improvements-in-quality-of-life-for-systemic-mastocytosis-patients/
- https://patientpower.info/novel-therapies-to-target-abnormalities-in-mast-cells/
- https://patientpower.info/what-does-a-future-with-systemic-mastocytosis-look-like/
US Hereditary Angioedema Association
US Food and Drug Administration
Center for Disease Control
International Mastocytosis and Mast Cell Diseases