TMS Webinar & Event Library2023 Webinars and EventsAugust 24, 2023: Findings from the PIONEER Trial of AvapritinibDuring this one-hour webinar, you will learn more about this ground-breaking study, hear an ISM patient’s perspective, and have some of your questions answered by our guest panelists. For more information about the speakers visit: https://tmsforacure.org/event-august-24th-research-webinar/To access the presentations and find more resources visit: https://tmsforacure.org/pioneer-trial-webinar-resources/2021 TMS 24th National Conference PresentationsFor background information on mast cells and mast cell diseases please view this Mast Cell Primer Slide presentation.Cutaneous Mastocytosis in AdultsIndolent Systemic MastocytosisAllogeneic Bone Marrow Transplantation in Systemic MastocytosisDr. George Q&AMyeloproliferative Neoplasm Associated with Systemic MastocystosisWhat is Mast Cell Disease Q&ATreatment Options for Advanced Systemic MastocytosisUpdate on Effective Treatment for Mastocytosis and MCASPerioperative Management of Mast Cell Disorders including Drug AllergiesGuided Meditation with Jan Marie SmithUpdates on the Use of Urinary Markers in Diagnosing MCAS and Mast Cell DiseaseBreathing Techniques with Jan HempsteadPregnancy in Mast Cell DiseaseUpdates on Venom Anaphylaxis in Mast Cell DiseaseQ&A with Mariana Castells and Lawrence SchwartzUses & Limitations of Serum Tryptase Levels in Mast Cell DisordersMattie the Mast Cell Drawing ExerciseHyperadrenergic POTS in Mast Cell DisordersMCAS Panel DiscussionBone Marrow Biopsies in Patients Presenting with Mast Cell Activation SymptomsGuide to Navigating HaTEndocrinology in Mast Cell DiseaseClair Francomano: Diagnosis of Hypermobile EDS and Hypermobility Spectrum DisordersAdvances in Mast Cell Biology through Single-Cell RNA SequencingMast Cell Activation Disease and Immune DeficiencyIntro to and Updates in Mastocytosis Clinical TrialsOsteopenia and Osteoperosis in Systemic MastocytosisIdentifying Novel Targets to Inhibit Mast CellsCOVID 19 Infection and Vaccination in Mast Cell Activation DisordersDynamic Neural Retraining System: an Effective Tool to Treat Mast Cell ActivationControlling Gastrointestinal Symptoms in People with Mast Cell DisordersMast Cells, Stress, Anxiety, and Options for TreatmentThe Power of Patient AdvocacyAnaphylaxis: When and How to TreatOctober 20th SlideshowMast Cells and Long-COVIDHow to Talk to Your Physician2021 Patient Voice ForumsWe are thrilled to announce the relaunch of our of Patient Voice Forums. Monthly, these forums will feature topics that matter most to our members2021 Patient Voice Forum – Mast Cell Nutrition: Tips and Tricks for a Healthy Holiday SeasonMonday, November 15, 2021Bonnie Nasar, RDN2021 Patient Voice Forum – Caring for the CaregiverFriday, September 10, 2021Amy Ruzicka, PhD 2021 Patient Voice Forum – Mast Cell Disease Medication Q&AFriday, August 13, 2021Matthew Giannetti, MD – Brigham and Women’s Hospital and Harvard Medical School 2021 Patient Voice Forum – Living Well with Mast Cell Disease: Considerations for emotional support, self-care, and a fulfilling quality of life (Slides)Wednesday, June 23, 2021Amy Ruzicka, PhD2021 Special Videocast – COVID19 Vaccine Study & Mast Cell Disease including Patient Q&A June 2021Thank you to our guest speakers: Dr. Mariana Castells, Director of the Mastocytosis Center; Dr. Matthew Giannetti, Associate Director of the Mastocytosis Center; Dr. Margee Louisias, Director of Diversity & Inclusion, from Brigham & Women’s Hospital and Harvard Medical School in Boston, MA.To find a study location near you or learn more about eligibility visitwww.covidvaccine-allergy.orgAdditional Resources:COVID-19 Vaccination in Mastocytosis: Recommendations of the European Competence Network on Mastocytosis (ECNM) and American Initiative in Mast Cell Diseases (AIM) (Bonadonna, et al, June 2021) https://www.sciencedirect.com/science/article/pii/S221321982100386XCOVID-19 infection in patients with mast cell disorders including mastocytosis does not impact mast cell activation symptoms (Giannetti, et al, May 2021)https://pubmed.ncbi.nlm.nih.gov/33631409/mRNA COVID-19 vaccine is well tolerated in patients with cutaneous and systemic mastocytosis with mast cell activation symptoms and anaphylaxis (Azenha Rama, et al, Jan 2021) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7816615/2021 Patient Voice Forum – Hereditary alpha Tryptasemia Patient Q&A May 2021Sarah Glover, DO, AGAF University of Mississippi Medical Center2021 Patient Voice Forum – Dysautonomia & Mast Cell Disease (Slides)Wednesday, April 21, 2021Lauren Stiles, JD, President & Co-Founder of Dysautonomia International. Q & A Session at: 1:01:50.2021 Patient Voice Forum – What You ‘Mast’ Know to Win Your Case (Social Security and Disability)Wednesday, March 31, 2021 We are grateful to our guest speakers Michael Liner and Jen Morgan with Elevate Disability. 2021 Patient Voice Forum – Pain Management with Mast Cell Diseases Wednesday, February 24, 2021 We are grateful to our guest speaker Stephanie Carroll, RN. 2021 Patient Voice Forum – Navigating Nutrition with Mast Cell Diseases Wednesday, January 7, 2021 We are grateful to our guest speaker Bonnie Nasar, RDN. Start of presentation at 14:40. Q & A session at 37:52. 2020 EventsThe Mast Cell Disease Society held a free concert at home featuring Ben Rabb, folk singer and songwriter. Watch and join us around the hope and healing power of music.Year End TMS Living Room Session | Ben RabbThe Mast Cell Disease Society held a free concert at home featuring Ben Rabb, folk singer and songwriter. Watch and join us around the hope and healing power of music.TMS Annual General Membership MeetingThe Mast Cell Disease Society held its annual General Membership Meeting on Tuesday, Dec. 1, 2020 to celebrate our work together as 10,000+ members strong to support one another and find a cure for all mast cell diseases.Meet & Greet with Executive DirectorTuesday, October 27, 2020 We are excited to welcome Lauren Denton as TMS’s executive director and dialogue about how we serve the mast cell disease community.2020 Patient Voice ForumsWe are thrilled to announce the launch of a new series of Patient Voice Forums. TMS wants to ensure our physicians are aware of the needs and concerns of our community. As such, beginning in February we will have a monthly online moderated forum on the various types of Mast Cell Diseases with TMS Advisory Board Physicians.2020 Patient Voice Forum – Pediatric Mast Cell Diseases Wednesday, June 3, 2020 We are grateful to our physician panel which included: Dr. Mariana Castells, Dr. Ari Fried and Dr. Anne Maitland2020 April Patient Voice Forum Wednesday, April 28, 2020 We are grateful to our physician Dr. Anne Maitland and Dr. Marla Barkoff for their participation.2020 Patient Voice Forum – Mastocytosis Wednesday, March 25, 2020 We are grateful to our physician panel which included: Dr. Cem Akin, Dr. Matthew Giannetti and Dr. Matthew Hamilton.2020 Patient Voice Forum – Mast Cell Activation SyndromeTuesday, February 11, 2020We are grateful to our physician panel which included: Dr. Matthew Hamilton, Dr. Marianna Castells, Dr. Marla Barkoff, Dr. Charity Fox, and Dr. Theo Theoharides *Please excuse any background clinic sounds you may hear. Some of our physicians have clinics which run into the evening. Thank you for your understanding.2019 TMS Patient and Caregiver Conference PresentationsGI in Mast Cell DiseaseMatthew Hamilton, MDMast Cell Activation SyndromeAnne Maitland, MD, PhDVenom Anaphylaxis in Mast Cell Disease Patrizia Bonadonna, MDDermatological Manifestations in Mast Cell Disease (slides)Ana Mosca, MDCem Akin, MD, PhDJason Gotlib, MDMariana Castells, MD, PhD: Adult Mast Cell Activation SyndromeAnupama Ravi, MD: Pediatric Mast Cell Activation Syndrome and Brief TMS Grant UpdateBiofeedback Basics for Stress and AnxietyNot all presenters were allowed to be filmed. As such, we are pleased to share a PDF of what they presented at the meeting.Melody Carter, MD Pediatric Mastocytosis
