The TouchStone SM Survey Working Group: Mesa RA, Sullivan EM, Dubinski D, Carroll B, Slee VM, Jennings S, Finnerty C, Bohannon L, Mathias SD, Castells M. (Poster presentation) Perceptions of patient disease burden and management approaches of systemic mastocytosis (SM) by healthcare providers (HCPs): results from the Touchstone SM survey. American Society of Hematology Annual Meeting. December 7, 2020.

LINK TO PRESENTATION

The TouchStone SM Survey Working Group: Mesa RA, Sullivan EM, Dubinski D, Carroll B, Slee VM, Jennings S, Finnerty C, Bohannon L, Mathias SD, Castells M. Patient Reported Outcomes among systemic mastocytosis (SM) patients in routine clinical practice: results from the TouchStone Survey. American Society of Hematology Annual Meeting. December 5, 2020.

LINK TO PRESENTATION

Jennings S (presenter), Slee VM, Finnerty C, Hempstead J, Bowman A, Akin C. Major Needs and Concerns of US Patients: Mastocytosis. European Competence Network on Mastocytosis (ECNM) Annual Meeting. August 29, 2020. Vienna, Austria.

Slee VM (presenter), Jennings S, Finnerty C, Hempstead J, Bowman A, Akin C. Major Needs and Concerns of US Patients: MCAS and Beyond. European Competence Network on Mastocytosis (ECNM) Annual Meeting. August 29, 2020. Vienna, Austria.

Jennings SV, Slee VM, Hobart, JS, Morrison Thuler L, Mayne DW, Martín-Martínez M. (2020) International Support and Advocacy for Mast Cell Disease Patients and Caregivers. In C Akin (Ed.) Mastocytosis: A Comprehensive Guide (pp. 267-286) Switzerland: Springer Nature.

LINK TO BOOK

Jennings SV, Slee VM, Hempstead JB, Slee AM, Castells MC, Akin C, Bowman AS. (Poster presentation) The Mastocytosis Society (TMS) Mast Cell Activation Syndrome (MCAS) Patient Perceptions Survey: Reported Diagnosis Groups-Medications and Elevated Mediator Associations. American Initiative in Mast Cell Diseases (AIM) Inaugural Investigator Conference. May 4, 2019. Stanford University, Palo Alto, CA.

Jennings SV, Slee VM, Hempstead JB, Slee AM, Castells MC, Akin C, Bowman AS. The Mastocytosis Society Mast Cell Activation Syndrome Patient Perceptions Survey. J Allergy Clin Immunol., 2019 Feb;143(2):AB427.

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LINK TO POSTER

Jennings SV, Slee VM, Zack RM, Verstovsek S, George TI, Shi H, Lee P, Castells MC. Patient Perceptions in Mast Cell Disorders. Immunol Allergy Clin North Am. 2018;38(3):505-25.

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LINK TO BOOK

Jennings SV (presenter), Slee VM, Hempstead JB, Slee AM, Castells MC, Akin C, Bowman AS. Patient Perceptions of Mast Cell Activation Syndrome. Mast Cell Activation Syndrome Workshop. September 7, 2018. National Institutes of Health (NIH), Bethesda, MD.

Russell N, Jennings S, Jennings B, Slee V, Sterling L, Castells M, et al. The Mastocytosis Society Survey on Mast Cell Disorders: Part 2-Patient Clinical Experiences and Beyond. J Allergy Clin Immunol Pract. 2018.

LINK TO ARTICLE

Russell N, Jennings S, Jennings B, Slee V, Sterling L, Castells M, et al. The Mastocytosis Society Survey on Mast Cell Disorders: Part 2-Clinical Experiences, Co-Morbidities and Additional Concerns. J Allergy Clin Immunol., 2015 Feb;135(2):AB136.

LINK TO ABSTRACT

LINK TO POSTER

Jennings S, Russell N, Jennings B, Slee V, Sterling L, Castells M, et al. The Mastocytosis Society Survey on Mast Cell Disorders: Patient Experiences and Perceptions. J Allergy Clin Immunol Pract. 2014 Jan-Feb;2(1):70-6.

LINK TO ARTICLE

LINK TO ARTICLE SUPPLEMENT

Jennings S, Russell N, Jennings B, Slee V, Sterling L, Castells M, et al. The Mastocytosis Society Survey on Mast Cell Disorders: Patient Experiences and Perceptions. J Allergy Clin Immunol., 2013 Feb;131(2):AB116.

LINK TO ABSTRACT