The Mastocytosis Society Conference

The Mastocytosis Society Inc. Conference
May 1 – 3, 2019

Event Overview

Join us May 1-3, 2019 in Northern California for the 2019 Patient Conference.

The 23rd national TMS Patient/Caregiver Conference will consist of lay-person-focused medical presentations, panel discussions, workshops and support group sessions, with time for questions, and will incorporate breaks to allow for resting periods, and free time to allow for casual socializing.

This conference will provide a uniquely supportive environment in which patients, caregivers and families learn to self-advocate, and will offer exposure to research and clinical trial information to which they normally would not have access. Patients, caregivers, physicians, young or established investigators, and biopharma can interact outside of the medical environment to promote more positive relationships in a casual atmosphere.

Registration is required and is now open.  Rates increase after Feb 1st. The deadline for registration is April 21, 2019.

Register Now


Venue and Provisions

Venue

TMS selected the Crowne Plaza Hotel Foster City-San Mateo as the venue for the Patient/Caregiver Conference due to its proximity to a major airport, restaurants, a major hospital, cost-conservativeness, and ability to provide accommodations for our medically-complex patient population. The hotel is handicapped-accessible and will accommodate people with disabilities.

Traveling with children

Families are welcome to attend the conference and children are offered a reduced registration rate. 

0-4 years old = Free

5-12 years old = Children’s Rate $75 (increased to $95 after Feb 1st)

13 and above = Adult rate

In addition to the registration cost above, a Children’s Room will be available to use throughout each day: $20 per day reserved in advance.  Although it will be supervised by childcare professionals, a parent must be in the Children’s Room with their children at all times. The conference speakers will be live-streamed to your laptop while in the Children’s Room, please bring headphones/earbuds.

If you would like to arrange for private childcare, you may do so through Town and Country Nannies by calling 415-567-0956 (TMS is not responsible/liable in any way for use of this service).


Hotel Information

We have reserved a guest block of rooms at the Crowne Plaza, Foster City. 

When making your reservations please reference that you are part of the guest block for the “The Mastocytosis Society Conference.”

The special rates listed below are available until April 16.  All reservations made after that date are subject to general availability.

Hotel Reservations

Crowne Plaza Foster City-San Mateo

Room Rates: $129 – $259/night
* rate varies each day

1221 Chess Drive
Foster City, CA 94404

By phone: 888-233-9527
Book Online

For a complete listing of all accommodations in the San Mateo area please visit the San Mateo County Silicon Valley Convention and Visitors Bureau


Schedule of Events

This is a provisional schedule, subject to change at any time, due to the many responsibilities of our esteemed speakers and panelists. We thank you for your understanding.

Wednesday, May 1, 2019
6:00-7:00 pm Early Registration, Meet and Greet with Board of Directors

7:00-9:00 pm Question & Answer Session; Support Groups (Patients/Caregivers/Parents)

Thursday, May 2, 2019
7:30-8:45 am Registration; Full Breakfast; Mast Cell Primer Video (optional) for new attendees

8:45-9:00 am Welcome/Opening Remarks: Valerie Slee, RN, BSN, Chair, Board of Directors

9:00-9:30 am Melody Carter, MD: Pediatric Mastocytosis

9:30-10:00 am Anupama Ravi, MD: Pediatric Mast Cell Activation Syndrome and TMS Grant Update

10:00-10:15 Break

10:15-10:45 am Cem Akin, MD, PhD: Adult Cutaneous and Systemic Mastocytosis

10:45-11:15 am Mariana Castells, MD, PhD: Adult Mast Cell Activation Syndrome

11:15-11:45 am Matthew Giannetti, MD: Mast Cell Activation Syndrome Controller Medications and Response to Therapy

11:45 am:-1:30 pm Lunch on your own

1:30-2:00 pm Jonathan Lyons, MD: Hereditary α-Tryptasemia

2:00-2:30 pm Jason Gotlib, MD, MS: Advanced Variants of Systemic Mastocytosis

2:30-2:45 pm Break

2:45-3:15 pm Tracy George, MD: Bone Marrow and Gastrointestinal Pathology in Mast Cell Disease

3:15-3:45 pm Catherine Weiler, MD, PhD: Diagnostic Algorithms and KIT Mutation Testing in Mastocytosis

3:45-4:00 pm Break

4:00-4:30 pm Patrizia Bonadonna, MD: Venom Anaphylaxis in Mast Cell Disease

4:30-5:00 pm Peter Valent, MD, Jason Gotlib, MD, MS, Cem Akin, MD, PhD: ECNM and AIM-Past, Present and Future

5:00-6:00 pm Valerie Slee, RN, BSN, Jan Hempstead, RN: Anaphylaxis & ER Preparedness Workshop

6:00-7:30 pm Dinner on your own

7:30-10:00 pm Ice Cream Social; Support Group Session; Casual sit and chat

7:30-8:00 pm Jan Hempstead, RN: Breathing and Meditation Workshop

Friday, May 3, 2019
7:30-9:00 am Registration & Full Breakfast; (8:30 am) Annual TMS meeting (open to all members)

9:00-9:15 am Larry Schwartz, MD, PhD: Tryptase Updates in Mast Cell Diseases

9:15-9:30 am Joseph Butterfield, MD: Urinary Mediator Testing in Mast Cell Diseases

9:30-9:45 am Dean Metcalfe, MD: Mediator Testing Validity and Outlook in Mast Cell Diseases

9:45-10:15 am Panel: Mast Cell Disease Mediator Testing (Schwartz/Butterfield/Metcalfe)

10:15-10:30 am Break

10:30-11:00 am Matthew Hamilton, MD: Gastrointestinal Presentation in Mast Cell Disease

11:00-11:30 am Loren Greene, MD, MA: Bone Manifestations in Mast Cell Disease

11:30 am-1:15 pm Lunch on your own

1:15-2:30 pm Concurrent Panels-Chose One of Two:

Panel A: Treatment Approaches for Advancing Forms of Mastocytosis (S. Jennings, PhD, Moderator; Jason Gotlib, MD,   MS, Deepti Radia, MBBS, MRCPI, FRCPath, Msc Med Ed, Animesh Pardanani, MD, PhD, and Celalettin Ustun, MD)
Panel B: Conditions Associated with Mast Cell Disease

1:15-1:35 pm Anne Maitland, MD, PhD: Conditions Associated with Mast Cell Disease

1:35-2:30 pm Panel (Jan Hempstead, RN, Moderator; Anne Maitland, MD, PhD, Clair Francomano, MD, Jonathan Lyons, MD, and Marla Barkoff, MD)

2:30-3:00 pm Nicholas Kounis, MD, PhD (Greece): Kounis Syndrome/Cardiac Manifestations of Mast Cell Disease

3:00-3:30 pm Ana Mosca, MD (Brazil): Dermatological Manifestations of Mast Cell Disease

3:30-3:45 pm Break

3:45-4:15 pm Theoharis Theoharides, MD, MS, MPhil, PhD: Depression/Anxiety/Neuropsychological Symptoms of Mast Cell Disease

4:15-5:15 pm Panel/Support: Depression/Anxiety/Neuropsychological Symptoms of Mast Cell Disease (Valerie Slee, RN, Moderator; Theoharis Theoharides, MD, MS, MPhil, PhD, Catherine Weiler, MD, PhD, Jennifer Nicoloro-SantaBarbara, MA, MSW)

5:15-6:30 pm Break

6:30 pm Buffet dinner at the hotel for all attendees and speakers/panelists. Appetizers will begin at 6:30 pm.


About San Mateo

San Mateo County/Silicon Valley, gateway to San Francisco and home of San Francisco International Airport and Stanford University, has both scenic beauty and the excitement of a cosmopolitan community.

Entertainment and Recreation

Are you looking for beaches, golf courses, lighthouses, museums, parks, whale watching, horseback riding, wine tasting, theaters, historic sites, marine reserves, farms and ranches, miniature golf, aviation? San Mateo County/Silicon Valley has all of these and more!

Restaurant Scene

When it comes to dining, San Mateo County/Silicon Valley is top-notch. Whether you’re looking for a quaint Italian restaurant nestled in downtown, a sidewalk café, a romantic seafood restaurant with stunning views of the water, or a brewpub, you’ll find exactly what you need.

For complete information on the area and all it has to offer, please visit San Mateo County Silicon Valley Convention and Visitors Bureau


Travel / Driving Directions / Parking

For general information on getting to San Mateo, airport transportation, and getting around town, please visit San Mateo County Silicon Valley Convention and Visitors Bureau

Airports

San Francisco International Airport (SFO) is the nearest major airport.  Travel time from SFO to San Mateo is approximately 15 minutes.  Oakland and San Jose airports are within approximately 40 minutes of the Crowne Plaza hotel.

Driving Directions

From SFO to the Crowne Plaza Hotel – 1121 Chess Dr., Foster City, 94404

Parking

The hotel offers complimentary parking.


Presenter Info

TBA


Sponsorship

The Mastocytosis Society, Inc. will hold their biennial conference for patients, caregivers and families impacted by mast cell diseases, followed by the inaugural American Initiative in Mast Cell Diseases (AIM) physician/investigator meeting.

Sponsorship levels and opportunities outlined below will be for both conferences.

For questions related to sponsorship opportunities contact fundraising@tmsforacure.org.

$100,000 Platinum Sponsor            

    • Premium logo placement on all promotional and conference materials at both conferences, such as:
        • Registration Packet
        • Conference binder
      • Proceedings Flash Drive
    • Premium logo placement and 60-word company bio on a special two-page sponsor insert included in the registration packet for each conference attendee.
    • Platinum sponsor acknowledgment and premium logo placement on www.tmsforacure.org conference page
    • Platinum sponsor acknowledgment and premium logo placement at the lecture hall in both conference venues
    • Platinum sponsor acknowledgment and premium logo placement in conference announcements
    • Complimentary registration for four company representatives to the patient and AIM conferences
    • Personal acknowledgment of the sponsor with special recognition at welcome and closing sessions at both conferences
    • 6-foot exhibitor table at patient and AIM conferences
    • Option to provide special promotional products and marketing materials in welcome bags for both conferences
    • Logo acknowledgment in all press release coverage
  • Platinum exhibitor location in exhibitor foyer

$50,000 Gold Sponsor

    • Gold logo placement on all promotional and conference materials for both conferences
    • Gold logo placement and 40-word company bio on a sponsor insert included in the registration packet for both conferences
    • Gold  logo placement in conference announcements
    • Complimentary registration for three company representatives to patient and AIM conferences
    • 6-foot exhibitor table at patient and AIM conferences
    • Option to provide special promotional products and marketing materials in welcome bags for both conferences
    • Logo acknowledgment in all press release coverage
  • Gold exhibitor location in exhibitor foyer

$25,000 Silver Sponsor             

    • Silver logo acknowledgment on all promotional and conference materials by level for both conferences
    • Silver logo and 20-word company bio on a sponsor insert included in the registration packet for both conferences
    • Complimentary registration for two company representatives to patient and AIM conferences
    • 6-foot exhibitor table at patient and AIM conferences
    • Logo acknowledgment in all press release coverage
  • Silver exhibitor location in exhibitor foyer

$10,000 Bronze Sponsor               

    • Bronze logo acknowledgment on all promotional and conference materials by level for both conferences
    • Bronze logo on a sponsor insert included in the registration packet for both conferences
    • Complimentary registration for one company representative to patient and AIM conferences
    • 6-foot exhibitor table at patient and AIM conferences
    • Logo acknowledgment in all press release coverage
  • Bronze exhibitor location in exhibitor foyer

$5,000 Sponsor             

    • Sponsor logo acknowledgment on all promotional and conference materials by level for both conferences
    • Sponsor logo on a sponsor insert included in the registration package for both conferences
    • Complimentary registration for one company representative to the patient conference only
    • 6-foot exhibitor table at the patient conference and AIM Conference
    • Logo acknowledgment in all press release coverage
  • Sponsor exhibitor location in exhibitor foyer

$1,000 Lecture Sponsor             

    • Option to provide special promotional products and marketing materials in welcome bags at both conferences
    • Logo acknowledgment on all promotional materials by level at both conferences
    • Logo acknowledgment in all press release coverage

Register for the Conference

For additional questions please contact us.