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Treatment & Research Centers

Jan 13, 2017

Medical and Research Centers that Treat Patients with Mast Cell Diseases Please note carefully any clarification of what each center specializes in. For example, some centers only treat patients with biopsy confirmed mastocytosis, some centers only treat aggressive or malignant disease, some treat only adults or children, and many also treat mast cell activation syndrome […]

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Nutrition

Nov 21, 2016

What is the difference between IgE allergies and mast cell triggers? Can you have IgE allergies and mastocytosis? Are there tests to identify these triggers? Some people have a genetic tendency to produce IgE (a type of antibody) to normally harmless substances, such as food, pollen, insect stings and medication. The body produces IgE directed […]

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Support Groups

Nov 21, 2016

Welcome! Support groups provide a way for individuals suffering from Mast Cell Diseases ~ and their caregivers ~ to communicate with each other, support each other, provide comfort and often share information that makes their daily lives better. TMS offers a variety of support opportunities, please see the contact listing at the bottom for your […]

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Systemic Mastocytosis Variants, including B and C findings and Mast Cell Leukemia

Nov 02, 2016

Systemic mastocytosis (SM) consists of a group of rare, heterogeneous disorders involving growth and accumulation of abnormal mast cells (MC) in one or multiple extracutaneous (non-skin) organ systems (Table 1). Standard technique can be used to obtain an iliac crest bone marrow (BM) biopsy and aspirate smear for diagnosis. Aspirated BM should be allocated for […]

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Cutaneous Mastocytosis Variants

Nov 02, 2016

An international consensus task force of mast cell disorder specialists has recently proposed updates to the diagnostic criteria and classification for cutaneous disease.1 Typical skin lesions found in mastocytosis, along with a positive Darier’s sign (see below), is the major criterion for diagnosing skin involvement in patients with mastocytosis. The two minor criteria are identified […]

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Fundraising Advocacy & Community

May 17, 2016

We are connected by love, desire, and our mission to find a cure for this disease. Our Community is what unites us and provides us the opportunity to embrace and support each other. Join Us. TMS heroes Our heroes come from all walks of life. They are caregivers, doctors, nurses, pediatricians, allergists, family members and of […]

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Websites

May 17, 2016

The Mastocytosis Society provides the links below to assist you with information on a variety of topics that may be relevant to your interests. While we hope that they may be helpful, we do not take responsibility for any of the content that is conveyed once you have left our website. AAAAI Anaphylaxis Emergency plan […]

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Medical Advisory Board

May 17, 2016

The Mastocystosis Society, Inc. is a nonprofit volunteer organization guided by a board of medical advisors who donate their time and expertise in support of the TMS mission. They have agreed to act as a point of contact for other physicians and health care providers needing additional information about mastocytosis and mast cell activation disorders. […]

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Mission Statement / History of Organization

May 17, 2016

Our Mission Statement The Mastocytosis Society is a 501(c)3 nonprofit organization dedicated to supporting patients affected by Mastocytosis or Mast Cell Activation Diseases as well as their families, caregivers, and physicians through research, education, and advocacy. History of Organization The Mastocytosis Society, Inc. (TMS) was founded in 1995 by Bill Abbottsmith, Linda Buchheit, Olive Clayson, […]

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Tests

May 17, 2016

First and foremost, a careful examination of the skin should be undertaken, looking for characteristic lesions of mastocytosis. If lesions are found, the physician should stroke the lesion firmly with a tongue depressor 5 or 6 times to see if it urticates (Darier’s sign). However, flushing and systemic low blood pressure can result from attempts […]

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