Support Groups

Support groups provide a way for individuals suffering from Mast Cell Disorders ~and their caregivers~ to communicate with each other, support each other, provide comfort and often share information that makes their daily lives better.

Find your area’s support group from the list below.  Contact them to join a group or just ask a question.  A large three-day TMS Biennial National Patient/Caregiver Conference is held in odd-numbered years (https://tmsforacure.org/tms-conference/).  In the even-numbered years TMS holds one-day Regional Expanded Support Group Meetings in different areas of the country. The smaller local support groups are listed below and meet at least once every year, more if they wish (IF they have a Leader – please volunteer to help!).

Upcoming support group meeting dates are listed here: https://tmsforacure.org/resources/support-group-meeting/

For general questions about support groups or interest in starting/assisting one in your area, please reach out to Cheri Smith: supportgroups@tmsforacure.org

On Facebook you can visit “The Mastocytosis Society” https://www.facebook.com/groups/155824303735/  for Private support and sharing, and “The Mastocytosis Society Inc News” https://www.facebook.com/The-Mastocytosis-Society-Inc-News-934144373407985/  for Public TMS news.


Alabama

Cheri Smith

supportgroups@tmsforacure.org


Alaska

Cheri Smith

supportgroups@tmsforacure.org


Arizona

Susanne Bragg

AZsupport@tmsforacure.org


Arkansas

Cheri Smith

supportgroups@tmsforacure.org


California

Northern California

Cay O.

northerncaliforniasupport@tmsforacure.org

San Francisco

Cay O.

sfbaysupport@tmsforacure.org

Southern California

Davita G.

southerncaliforniasupport@tmsforacure.org

_______________________________________________________________________________

Colorado

Jan Marie Smith

coloradosupport@tmsforacure.org


Connecticut

Sara Gemmill, RN

CTsupport@tmsforacure.org


Delaware

(See Virginia/Maryland/Delaware/DC post below)

Deborah Maude

Deborah.Maude@tmsforacure.org


Florida

Michele Kress

floridasupport@tmsforacure.org

Deborah Zeoli

daytonabeachsupport@tmsforacure.org


Georgia

Rita Barlow

georgiasupport@tmsforacure.org


Hawaii

Cheri Smith

supportgroups@tmsforacure.org


Idaho

Cheri Smith

supportgroups@tmsforacure.org


Illinois

Chicago  

Jeannie Dunn /Emily Ploegman

chicagosupport@tmsforacure.org


Indiana

Pam Hodge

indianasupport@tmsforacure.org


Iowa

Cheri Smith

supportgroups@tmsforacure.org


Kansas

Cheri Smith

supportgroups@tmsforacure.org


Kentucky

Cheri Smith

supportgroups@tmsforacure.org


Louisiana

Cheri Smith

supportgroups@tmsforacure.org


Maine

Cheri Smith

supportgroups@tmsforacure.org


Maryland

(See Virginia/Maryland/Delaware/DC post)

Deborah Maude

supportgroups@tmsforacure.org


Massachusetts

Patty Wright

WesternMAsupport@tmsforacure.org


Michigan

Melanie Wardell

michigansupport@tmsforacure.org


Minnesota / North Central States

Kristine Greer

minnesotasupport@tmsforacure.org


Missouri

Kansas City

Brenda & Patrick Hukriede / Rose Steeby

kcMOsupport@tmsforacure.org

Springfield/Branson area

Heather Largent / Gloria Walker

SpringfieldBransonMOsupport@tmsforacure.org

St. Louis

Cheri Smith

stlouisMOsupport@tmsforacure.org


Montana

Cheri Smith

supportgroups@tmsforacure.org


Nebraska

Cheri Smith

supportgroups@tmsforacure.org


Nevada

Cheri Smith

supportgroups@tmsforacure.org


New Hampshire

Cheri Smith

supportgroups@tmsforacure.org


New Jersey

Cheri Smith

supportgroups@tmsforacure.org


New Mexico

Cheri Smith

supportgroups@tmsforacure.org


New York

Jan Hempstead

NYsupport@tmsforacure.org


North Carolina

Emily Bolden / Sharon Renfroe

northcarolinasupport@tmsforacure.org


North Dakota

Cheri Smith

supportgroups@tmsforacure.org


Northeast / New England States

(Also see “Massachusetts” above)

Cheri Smith

northeastsupport@tmsforacure.org


Ohio

Cheri Smith

cheri.smith@tmsforacure.org


Oklahoma

Cheri Smith

supportgroups@tmsforacure.org


Oregon / Washington/Pacific NW

Northern Oregon & Washington (Pacific NW area)

pnwsupport@tmsforacure.org

Southern Oregon & Northern California area

Cheri Smith

southernoregon@tmsforacure.org


Pennsylvania

Kathie Murphy

pennsylvaniasupport@tmsforacure.org

Pittsburgh Area

Shelly Faris and Anna Longo

PittsburghPASupport@tmsforacure.org


Rhode Island

Cheri Smith

supportgroups@tmsforacure.org


South Carolina

Cheri Smith

supportgroups@tmsforacure.org


South Dakota

Cheri Smith

supportgroups@tmsforacure.org


Tennessee / Southeast States

supportgroups@tmforacure.org

 


Texas

Celeste Finnerty

HoustonTXSupport@tmsforacure.org


Utah

Cheri Smith

supportgroups@tmsforacure.org


Vermont

Cheri Smith

supportgroups@tmsforacure.org


Virginia / Maryland / Delaware/DC

Deborah Maude

washingtonDCsupport@tmsforacure.org

virginiasupport@tmsforacure.org


Washington DC

(See Virginia/Maryland/Delaware/DC post)

Deborah Maude

washingtonDCsupport@tmsforacure.org


Washington State

(See Oregon/Washington/Pacific NW post)

Cheri Smith

supportgroups@tmsforacure.org


West Virginia

Cheri Smith

supportgroups@tmsforacure.org


Wisconsin

Cheri Smith

supportgroups@tmsforacure.org


Wyoming

Cheri Smith

supportgroups@tmsforacure.org


***********************************************************************

International

TMS collaborates with these sister organizations around the world whenever possible:


Australia

David & Heather Mayne

info@mastocytosis.com.au


Brazil

Lisa Morrison Thuler

Mastocitose Brasil: mastocitosebrasil@gmail.com


Canada

Shawna Lechner-Rumpel, President

shawna.lecher@sasktel.net

support@mastocytosis.ca

306.789.9800


Germany

www.mastozytose.com

www.mastocytosis.eu


United Kingdom

Dawn Brogden, Co-Chair

dawn@ukmasto.org

Jess Hobart, Co-Chair

jess@ukmasto.org

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