Welcome! Support groups provide a way for individuals suffering from Mast Cell Diseases ~ and their caregivers ~ to communicate with each other, support each other, provide comfort and often share information that makes their daily lives better. TMS offers a variety of support opportunities, please see the contact listing at the bottom for your specific area.
Local Support Groups: See the contact listing below. Prior to the pandemic with COVID-19, these meet one or more times every year, usually for just a couple of hours, to share experiences… sometimes there is an expert speaker invited and other times it is an informal gathering to share together or meetup for coffee, etc. Currently, our support groups are meeting online and anyone anywhere is welcome at any meeting. View our upcoming local and regional support group meeting dates .
If you have general questions or your state is not listed, please consider volunteering, you don’t need to be an expert, just willing to help get everyone together! TMS will provide training, guidance and any assistance you need, please contact email@example.com.
National Biennial TMS Patient/Caregiver Conference: In odd-numbered years a large three-day Biennial National Patient/Caregiver Conference (approx. 200 attendees) is held in different areas of the country each time. For 2021, our conference will be held virtually due to the COVID-19 pandemic. This is a wonderful place to meet other patients, share your journey, and its very exciting to listen to (and meet!) expert physicians speaking about mast cell diseases, new research and treatments, etc with Q&A time. Information about next conference will be found here: https://tmsforacure.org/tms-conference/. Hope you can join!
Private peer-to-peer support (non-medical) and sharing is available on Facebook, you can visit “The Mast Cell Disease Society Support Group Forum” https://www.facebook.com/groups/155824303735/
Public TMS news is provided at “The Mast Cell Disease Society Inc” https://www.facebook.com/tmsforacure
Other online communities: https://tmsforacure.org/resources/online-support-communities/
We hope to meet you soon!
Jan Marie Smith
Sara Gemmill, RN
Minnesota / North Central States
New England (ME, MA, NH, RI, VT)
Emily Bolden / Sharon Renfroe
Pediatric meetings: Kelly & Anthony Bennett
Oregon / Washington/Pacific NW
Oregon & Washington (Pacific NW area)
Shelly Faris /Anna Longo
Kristy & Balwinder
Celeste Finnerty and Jacob Hall
This website hosts countries from around the world, in their own languages, containing resources available there and supporting the annual International Awareness Day on October 20 each year: www.mastocytosis-mcas.org
TMS also collaborates with these mast cell disease organizations around the world whenever possible:
David & Heather Mayne
Lisa Morrison Thuler
Mastocitose Brasil: firstname.lastname@example.org
Mastocytosis Society Canada
www.mastozytose.com (After the tragic death of the founder, Ms. Andrea König in June 2017 both the association itself and the members Forum on the homepage “Mastozytose.com” were dissolved. The website is still available, but since the dissolution of the association there has been no new information added to it.)
https://mastozytose-info.de/ (This is the new website)