Support Groups

Support groups provide a way for individuals suffering from Mast Cell Disorders ~and their caregivers~ to communicate with each other, support each other, provide comfort and often share information that makes their daily lives better.

Find your appropriate support group from the list below.  Information on joining each particular group is located within the respective listing.

For general questions on support groups or interest  in starting your own, please reach out to supportgroups@tmsforacure.org.


Arizona

Phoenix

Rachael Nathan

Sean-Michael Gettys

phoenixsupport@tmsforacure.org

Tucson

Kim Bonhoff

tucsonsupport@tmsforacure.org


California

Northern California

Michelle Lamanna

northerncaliforniasupport@tmsforacure.org

San Diego

sandiegosupport@tmsforcure.org

San Francisco

Cay or Ginny

coassocs@aol.com

sfbaysupport@tmasforacure.org

Southern California

Davita Greenwald and Janet Bender

southerncaliforniasupport@tmsforacure.org


Florida

Michele Kress / Sandy Johnson

floridasupport@tmsforacure.org


Illinois

Chicago  

Cheri Smith

scoach62@hotmail.com

chicagosupport@tmsforacure.org

 

Southern Illinois

Cheri Smith

scoach62@hotmail.com

illinoissupport@tmsforacure.org


Michigan

Julia Stewart

michigansupport@tmsforacure.org


Minnesota / North Central States

Mishele Cunningham

minnesotasupport@tmsforacure.org

northcentralsupport@tmsforacure.org

education@tmsforacure.org


Missouri

Kansas City

Cheri Smith

scoach62@hotmail.com

kansassupport@tmsforacure.org

St. Louis

Cheri Smith

scoach62@hotmail.com

stlouissupport@tmsforacure.org


Nebraska

Jim and Betty McKee

nebraskasupport@tmsforacure.org


Nevada

Las Vegas

Jill Rosen-Zamir

lasvegassupport@tmsforacure.org


North Carolina

Emily Bolden / Sharon Renfroe

northcarolinasupport@tmsforacure.org


Northeast / New England States

Rita Barlow

northeastsupport@tmsforacure.org


Ohio

Linda Buchheit

ohiosupport@tmsforacure.org


Oregon / Washington – Pacific Northwest

Jan Groh

pnwsupport@tmsforacure.org


Pennsylvania

Kathie Murphy

pennsylvaniasupport@tmsforacure.org


Tennessee / Southeast States

Patty Smith, Support Group leader

Contact:  Cheri Smith

scoach62@hotmail.com

 

 


Virginia / Maryland / Delaware

Maria Dastur

mariacdastur@gmail.com

virginiasupport@tmsforacure.org


Washington DC

Patricia Beggiato

washingtonsupport@tmsforacure.org

beggiato@aol.com


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International

TMS collaborates with these sister organizations around the world whenever possible:


Australia

David Mayne

info@mastocytosis.com.au


Brazil

Lisa Morrison Thuler

Mastocitose Brasil: mastocitosebrasil@gmail.com


Canada

Shawna Lechner-Rumpel, President

shawna.lecher@sasktel.net

support@mastocytosis.ca

306.789.9800


Germany

Andrea Koenig

Mastozytose Initiative –

Selbsthilfenetzwerk e.V.

Andrea Koeniq M.A. – Chairwoman

MarshallstraBe 114

89231 Neu-Ulm, Germany

a.koenig@mastozystose.com

www.mastozytose.com

www.mastocytosis.eu


United Kingdom

Dawn Brogden, Co-Chair

dawn@ukmasto.org

Jess Hobart, Co-Chair

jess@ukmasto.org

Emergency Room Guide

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