Support Groups

Welcome! Support groups provide a way for individuals suffering from Mast Cell Diseases ~ and their caregivers ~ to communicate with each other, support each other, provide comfort and often share information that makes their daily lives better. TMS offers a variety of support opportunities, please see the contact listing at the bottom for your specific area.

Local Support Groups: See the contact listing below.  Prior to the pandemic with COVID-19, these meet one or more times every year, usually for just a couple of hours, to share experiences… sometimes there is an expert speaker invited and other times it is an informal gathering to share together or meetup for coffee, etc.  Currently, our support groups are meeting online and anyone anywhere is welcome at any meeting. View our upcoming local and regional support group meeting dates .

If you have general questions or your state is not listed, please consider volunteering, you don’t need to be an expert, just willing to help get everyone together! TMS will provide training, guidance and any assistance you need, please contact supportgroups@tmsforacure.org.

National Biennial TMS Patient/Caregiver Conference: In odd-numbered years a large three-day Biennial National Patient/Caregiver Conference (approx. 200 attendees) is held in different areas of the country each time.  For 2021, our conference will be held virtually due to the COVID-19 pandemic.  This is a wonderful place to meet other patients, share your journey, and its very exciting to listen to (and meet!) expert physicians speaking about mast cell diseases, new research and treatments, etc with Q&A time.  Information about next conference will be found here: https://tmsforacure.org/tms-conference/. Hope you can join!

Private peer-to-peer support (non-medical) and sharing is available on Facebook, you can visit “The Mast Cell Disease Society Support Group Forum” https://www.facebook.com/groups/155824303735/ 

Public TMS news is provided at “The Mast Cell Disease Society Inc” https://www.facebook.com/tmsforacure

Medical questions can be asked of TMS RNs in a private forum at TMS.Inspire.com or by email to nurses@tmsforacure.org

Other online communities: https://tmsforacure.org/resources/online-support-communities/

We hope to meet you soon!


Arizona

Susanne Bragg

AZsupport@tmsforacure.org


California

Northern California

Cay O.

northerncaliforniasupport@tmsforacure.org

San Francisco

Cay O.

sfbaysupport@tmsforacure.org

Southern California

Davita G.

southerncaliforniasupport@tmsforacure.org

_______________________________________________________________________________

Colorado

Jan Marie Smith

coloradosupport@tmsforacure.org


Connecticut

Sara Gemmill, RN

CTsupport@tmsforacure.org


Florida

Michele Kress

floridasupport@tmsforacure.org


Georgia

Emily Bolden

georgiasupport@tmsforacure.org

 


Illinois

Chicago  

Jeannie Dunn

chicagosupport@tmsforacure.org


Indiana

Pam Hodge

indianasupport@tmsforacure.org


Michigan

Melanie W.

michigansupport@tmsforacure.org


Minnesota / North Central States

Kristine Greer

minnesotasupport@tmsforacure.org

 


New England (ME, MA, NH, RI, VT)

Valerie Slee

valerie.slee@tmsforacure.org


New York

Jan Hempstead

UpstateNYsupport@tmsforacure.org

Courtney Rabb

TristateNYsupport@tmsforacure.org


North Carolina

Emily Bolden / Sharon Renfroe

northcarolinasupport@tmsforacure.org

Pediatric meetings: Kelly & Anthony Bennett

NCPediatricSupport@tmsforacure.org


Oregon / Washington/Pacific NW

Oregon & Washington (Pacific NW area)

Jeremy Saxton

Oregonsupport@tmsforacure.org

pnwsupport@tmsforacure.org


Pennsylvania

Kathie Murphy

pennsylvaniasupport@tmsforacure.org

Pittsburgh Area

Shelly Faris /Anna Longo

PittsburghPASupport@tmsforacure.org

 

 


Texas

Kristy & Balwinder

DallasTXsupport@tmsforacure.org

Celeste Finnerty

HoustonTXSupport@tmsforacure.org


***********************************************************************

International

This website hosts countries from around the world, in their own languages, containing resources available there and supporting the annual International Awareness Day on October 20 each year: www.mastocytosis-mcas.org

TMS also collaborates with these mast cell disease organizations around the world whenever possible:


Australia

David & Heather Mayne

info@mastocytosis.org.au


Brazil

Lisa Morrison Thuler

Mastocitose Brasil: mastocitosebrasil@gmail.com


Canada

Mastocytosis Society Canada

mastocytosis.ca

info@mastocytosis.ca

 


Germany

www.mastozytose.com  (After the tragic death of the founder, Ms. Andrea König in June 2017 both the association itself and the members Forum on the homepage “Mastozytose.com” were dissolved. The website is still available, but since the dissolution of the association there has been no new information added to it.)

https://mastozytose-info.de/ (This is the new website)

Contact:    kontakt@mastozytose-info.de

 


United Kingdom

info@ukmasto.org
www.ukmasto.org

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Emergency Room Guide 2021

DOWNLOAD PDF >