SUPPORT GROUP MEETINGS
Welcome 🙂 All meetings are open to patients, their families, and caregivers.
2018 is a special year for Support Group growth! Along with the regular Support Group Meetings, TMS is planning some expanded all-day Mini-Conference Regional Support Group Meetings, so if you can attend one in a state near you we would very much love to have you come, ask questions, share experiences, and meet some new friends!
Below are the current Support Group Meeting listings… Please keep checking back for additional listings!
The goal is to have at least one group in every state – Click here to find the Support Group Leader in your area. If you would like to become a Support Group Leader, or would like to assist, please let Cheri Smith, Support Group Chair, know: supportgroups@tmsforacure.org
Please remember that meetings are scent-free (hair products, hand sanitizers, lotions, deodorants, etc), and any food and beverage that you bring should be allergy/trigger-free, with all ingredients listed if to be shared with the group.
Please understand that meeting dates may need to be cancelled or changed because of changes in physician/speaker schedules, illness, weather conditions, etc and we will endeavor to notify members (sign up for membership here, its FREE!). Members in the area of the meeting are sent email blasts with meeting details, updates, and reminders.
Have a wonderful time!
DC/MD/VA Support Group Meeting-Baltimore, MD
When: September 15, 2018 Cancelled, please see October meeting info below instead
Where: UM Baltimore Washington Hospital Center
301 Hospital Drive, Glen Burnie, MD 21061
Courtney Conference Center
8th Floor
OHIO Support Group Meeting
When: Saturday, September 22, 2018 from 1:00 – 5:00. CANCELLED
Where: Pickerington Public Library,7861 Refugee Road, Pickerington OH 43147
Cheri Smith will be hosting this meeting, please RSVP to her: cheri.smith@tmsforacure.org
MISSOURI, St. Louis Regional Support Group Meeting
When: October 6, 2018… 10:00-4:00 Postponed
Where: Missouri Baptist Hospital, 3015 North Ballas Road, Auditorium 1 & 2, Main Tower, 1st Floor, St. Louis, MO 63131
Speaker: Dr. Leonard Weinstock, GI physician (approved)
Cheri Smith will be hosting this meeting. RSVP directly to cheri.smith@tmsforacure.org
MISSOURI, Kansas City Support Group Meeting
When: Saturday October 6th, 2018 … 11:00-4:00
Where: Liberty Hospital, 2521 Glenn Hendren Drive, Doctor Office Building 2, Liberty, MO 64068
RSVP to kcMOsupport@tmsforacure.org
DC/MD/VA Support Group Meeting-Baltimore, MD
When: Saturday, October 13, 2018
Where: UM Baltimore Washington Hospital Center
301 Hospital Drive, Glen Burnie, MD 21061
Courtney Conference Center, 8th Floor
1:00 p.m. – 2:00 p.m. – Rebecca Snow
2:00 p.m. – 2:30 p.m. – Q and A with Rebecca
2:30 p.m. – 2:45 p.m. – Break
2:45 p.m. – 3:45 p.m. – Dr. Theo Theoharides (Cancelled)
3:45 p.m. – 4:15 p.m. – Q and A with Dr. Theoharides (Cancelled)
4:15 p.m. – 5:00 p.m. – Support Group
MCAS savvy nutritionist and herbalist Rebecca Snow will teach us how to use foods, herbs and lifestyle changes to reduce inflammation. More about Rebecca at: RebeccaSnow.com
Space is limited, RSVP to reserve your spot at mastcellfriends@gmail.com
Western MA Support Group Meeting (All MA and other states also welcome!)
When: Saturday, October 20, 2018 … 12:00 – 3:00pm
Where: Church of the Atonement, 36 Court St, Westfield, MA 01085
PARKING: Available in the parking lot behind the church free of charge.
BUS: stops available at Transit Center 2 blocks from church or Stop and Shop, one block from church, depending on bus line. Contact for ride to church if needed.
SPEAKER: Dr. Jonathan Bayuk DO, board certified allergist, clinical immunologist, internist; Chief of the Allergy and Immunology Division at Baystate Medical Center, Director of Allergy and Immunology Curriculum at Baystate Medical Center and Tufts University School of Medicine, assistant professor of medicine at Tufts, instructor at Springfield College, where he teaches the allergy component of the Physician Assistant program, past president of both the New England Society of Allergy and the Massachusetts Allergy and Asthma Society.
Welcome to the first meeting of our group! We welcome all patients with both diagnosed and suspected mast cell diseases, their families, caregivers, friends, as well as interested students and medical personnel. There is no fee to attend. Due to possible patient reactions, we ask that attendees do not use/wear any scented products or use hand sanitizers, and refrain from eating or drinking anything but water during the meeting.
Must RSVP to Patty Wright at pasw2540@gmail.com Please indicate the number of spaces you would like reserved when you RSVP.
PENNSYLVANIA Support Group Meeting
Must RSVP to Cheri Smith at cheri.smith@tmsforacure.org (Please do not RSVP on Facebook)
TMS encourages everyone to bring their support person/people. Please indicate the number of spaces you would like reserved when you RSVP.
You will receive a confirmation email once your RSVP has been received.
CONNECTICUT Support Group Meeting
When: Saturday, October 20, 2018 … 1:00 – 4:00
Where: Acton Public Library, 2nd floor, 60 Old Boston Post Road, Old Saybrook, CT 06475
Parking is available behind the library.
RSVP: Sara Gemmill at CTsupport@tmsforacure.org
Please indicate the number of spaces you would like reserved when you RSVP.
The Mastocytosis Society Connecticut Area Support Group provides support to and is open to all patients with mast cell disorders or suspected mast cell disorders, their families and caregivers. There is no fee to attend.
Please refrain from wearing scented products or using heavily scented products, including laundry detergents, prior to the meeting. Some patients are negatively affected by strong scents. Some patients react to food odors so we ask that attendees refrain from eating during the meeting.
INDIANA Support Group Meeting
When: Saturday, October 20, 2018 … 1:00 – 4:00
Where: AVON Town Hall, 6570 E US HWY 36 (Rockville Road), Avon, IN 46123
RSVP: Pam Hodge at pam.hodge@tmsforacure.org Please specify how many seats you would like reserved.
This Support Group is open to all patients with mast cell disorders or suspected mast cell disorders, their families and caregivers. There is no fee to attend.
Please refrain from wearing scented products or using heavily scented products, including laundry detergents, prior to the meeting. Some patients are negatively affected by strong scents. Some patients react to food odors so we ask that attendees refrain from eating during the meeting.
Upstate NY Support Group Meeting
When: Saturday, October 20th … 1-4 pm
Where: Western Turnpike Rescue Squad, 200 Centre Drive, Albany, NY 12203
Drive down Centre Drive, past the bay doors and turn left at the flag pole. The “front” door is right by parking lot.
RSVP: jan.hempstead@tmsforacure.org
This will be a totally scent-free room.
Please no food or drinks other than water. Some participants are very sensitive.
Patients, family and caregivers are all welcome.
ARIZONA Support Group Meeting
When: Saturday, November 3, 2018… 10:00 am – 4:00 pm
Where: HonorHealth Scottsdale Shea Medical Center, 9003 E. Shea Blvd., Scottsdale AZ 85260
Speaker: Dr. Theo Theoharides
CALIFORNIA, San Francisco Bay Area Support Group Meeting
When: December 8, 2018 from 1:00 to 4:00 p.m.
Where: Kaiser Medical Building, 3701 Broadway in Oakland, CA. Ground floor in Meeting rooms B & C.
Parking: There is street parking as well as a parking lot connected to the building the meeting is in. There is no charge for parking on the weekends.
The Mastocytosis Society San Francisco Bay Area Support Group provides support to and is open to all patients with mast cell disorders or suspected mast cell disorders, their families and caregivers. There is no fee to attend.
Please refrain from wearing scented products or using heavily scented products, including laundry detergents, prior to the meeting. Some patients are negatively affected by strong scents. Some patients react to food odors so we ask that attendees refrain from eating during the meeting.
If you have any questions about the support group please email me at sfbaysupport@tmsforacure.org
MARYLAND Support Group Meeting
When: Saturday, December 8, 2018 … 9:30 – 3:00
Where: UM Baltimore Washington Medical Center, 301 Hospital Drive – 8th Floor, Glen Burnie, MD 21061
Speaker: Dr. Theo Theoharides Ph.D. M.D.
RSVP: Cheri Smith, TMS support group chair cheri.smith@tmsforacure.org
Please indicate the meeting location and the number of spaces you would like reserved when you RSVP.
The Mastocytosis Society Maryland Area Support Group provides support to and is open to all patients with mast cell disorders or suspected mast cell disorders, their families and caregivers. There is no fee to attend.
*Please remember all TMS events are scent-free due to severe allergies*
Please refrain from wearing scented products or using heavily scented products including laundry detergents, fabric softeners, lotions, and hand santizers prior to the meeting. Some patients are negatively affected by strong scents. Some patients react to food odors so we ask that attendees refrain from eating during the meeting.
(Please do not RSVP through facebook.)
