Finding a Physician
Finding a Physician
We understand how difficult it can be to locate physicians that treat mast cell diseases. Our experience tells us that the best source for referrals is our network. Below are Medical and Research Centers who are specialized in mast cell diseases. Since we find that the best referrals come from other satisfied members, we also recommend that you join our online support communities to ask about physicians there. All physician recommendations from our online support forums are patient generated and not from TMS.
Medical and Research Centers that Treat Patients with Mast Cell Diseases
Please note what each center specializes in and that each center may have their own separate process, such as physician referral. For example, some centers only treat patients with biopsy-confirmed systemic mastocytosis, while others only treat advanced variants. It is indicated below if a center will treat patients for mast cell activation syndrome and whether or not they will treat adults and/or children. Comprehensive centers can do the entire work-up, including evaluation, physical exam, KIT mutation analysis, mediator testing and bone marrow biopsy with flow cytometry, using appropriate stains for tryptase and expression of CD2 and CD25.
The list below was updated as of June 2020. For additional information regarding US centers, please visit the American Initiative in Mast Cell Diseases. The American Initiative in Mast Cell Diseases is reviewing potential Centers of Excellence and Reference Centers; please visit their website, http://www.aimcd.net , where information regarding new centers will be posted.
Abbreviations used below:
MCAS: Mast Cell Activation Syndrome
CM: Cutaneous Mastocytosis
SM: Systemic Mastocytosis
ISM: Indolent Systemic Mastocytosis
SSM: Smoldering Systemic Mastocytosis
SM-AHN: Systemic Mastocytosis with
an Associated Hematologic Neoplasm
ASM: Aggressive Systemic
Mastocytosis
MCL: Mast Cell Leukemia
MCS: Mast Cell Sarcoma
MPN: Myeloproliferative Neoplasm
United States of America
ALABAMA
University of Alabama at Birmingham
UAB Comprehensive Cancer Center
1720 2nd Avenue, South
North Pavilion, Room 2540C
Birmingham, AL 35294
Contact: Pankit Vachhani, MD
Phone: 205-934-6770
Specialization: Adults with SM, SSM,
ASM, SM-AHN and MCL.
CALIFORNIA
Stanford Cancer Center
875 Blake Wilbur Drive, Room 2327B
Stanford, CA 94305-5821
Contact: Jason Gotlib, MD, MS
Professor of Medicine (Hematology)
Stanford University Medical Center
Phone: 650-498-6000
Fax: 650-724-5203
Specialization: Adults. Biopsy-proven,
advanced variants of SM only, including
SSM, SM-AHN, ASM and MCL.
Diagnosis, treatment, and research.
COLORADO
University of Colorado Hospital
Blood Cancer/Bone Marrow
Transplant Program
1665 Aurora Ct, Rm 2257
Aurora, CO 80045
Contact: William A. Robinson, MD, PhD
Professor, Division of Medical Oncology
Phone: 720-848-2869
Fax: 720-848-0704
Specialization: Adults. ISM, SSM,
SM-AHN, ASM and MCL. Diagnosis
(bone marrow biopsy can be arranged),
treatment, and research.
ILLINOIS
Rush University
Department of Medicine
Division of Hematology, Oncology
and Cell Therapy
1725 West Harrison St., Suite 836
Chicago, IL 60612
888-352-7874 (appointment line)
Contact: Celalettin Ustun, MD
Specialization: Adults with advanced
variants: SSM, ASM, SM-AHN, and
MCL. Diagnosis, treatment, and
research. Stem cell transplant program.
MARYLAND
National Institutes of Health/
National Institute of Allergy and
Infectious Diseases (NIH/NIAID)
Building 10, Room 11C207
10 Center Drive – MSC1881
Bethesda, MD 20814-1881
Contact: Dean D. Metcalfe, MD
Chief, Mast Cell Biology Section
Phone: 301-496-2165
Fax: 301-480-8384
Contact: Melody Carter, MD
Pediatrics
Phone: 301-496-8772
Specialization: Adults and pediatric.
Physician referrals only for CM,
biopsy-proven SM, and adult idiopathic
anaphylaxis. Diagnosis (bone marrow
biopsies), treatment, and research.
MASSACHUSETTS
Brigham and Women’s Hospital (BWH)
and Dana Farber Cancer Institute (DFCI):
Boston Center of Excellence
for Mastocytosis
Brigham and Women’s Hospital
Division of Rheumatology,
Immunology and Allergy
60 Fenwood Rd., Brookline, MA 02115
Phone: 617-732-9850
Fax: 617-525-1310
Contact: Mariana Castells, MD, PhD
Director, Center of Excellence for
Mastocytosis
Professor of Medicine
Harvard Medical School
Phone: 617-732-9850
Fax: 617-525-1310
Contact: Richard Horan, MD
Assistant Professor of Medicine
Harvard Medical School
Phone: 617-732-9850
Fax: 617-525-1310
MASSACHUSETTS continued
Contact: Matthew P. Giannetti, MD
Phone: 617-525-1272
Fax: 617-732-5766
Brigham and Women’s Hospital
Division of Gastroenterology
75 Francis St., Boston, MA 02115
Contact: Matthew J. Hamilton, MD
Instructor of Medicine
Harvard Medical School
Phone: 617-732-6389
Fax: 617-264-5277
Dana Farber Cancer Institute
Hematologic Oncology Program
450 Brookline Ave., Dana D1B30
Boston, MA 02215
Contact: Daniel DeAngelo, MD, PhD
Associate Professor of Medicine
Harvard Medical School
Phone: 617-632-6028
Fax: 617-632-6771
Specialization: Adults. Pediatric
(outpatient only at BWH; more complex
pediatric cases may be seen in
conjunction with Children’s Hospital
Boston). Physician referral required. All
mastocytosis and MCAS; only SM and
variants for DFCI. Diagnosis (can arrange
bone marrow biopsies), treatment, and
research.
Tufts University School of Medicine
136 Harrison Avenue
Boston, MA 02111
Contact: Theoharis Theoharides, MD, PhD
Professor of Pharm. and Internal Medicine
Phone: 617-636-6866
Fax: 617-636-2456
Does not see patients in clinic. Available
for consultation with physicians.
MICHIGAN
University of Michigan
Comprehensive Cancer Center
Myeloproliferative Neoplasms and
Systemic Mastocytosis Clinic
1500 East Medical Center Drive, Ann
Arbor, MI 48109
Contact: Cem Akin, MD, PhD
Professor of Medicine
Department of Internal Medicine
Division of Allergy and Clinical
Immunology
24 Frank Lloyd Wright Drive
PO Box 442, Suite H-2100,
Ann Arbor, MI 48106-0422
Phone: 734-936-5634
Phone (new patient coordinator): 734-
232-2071
Fax: 734-647-6263
Specialization: Adults. Biopsy-proven
only. ISM, SSM, ASM, SM-AHN,
and MCL. Will perform diagnostic
bone marrow biopsies for patients
with elevated tryptase or biopsyproven cutaneous disease. Diagnosis,
treatment, and research.
Mayo Clinic Program for Mast Cell and
Eosinophil Disorders
200 First St. SW, Rochester, MN 55905
Mayo Clinic – Allergy Department
Contact: Joseph Butterfield, MD,
Director
Contact: Anupama Ravi, MD
Pediatric Mastocytosis and MCAS
Contact: Thanai Pongdee, MD
Phone:507-284-9989
Fax: 507-284-0902
Specialization: Adults and pediatric.
All mast cell related diseases excluding MCAS. Diagnosis, bone marrow biopsy,
treatment, and research.
Mayo Clinic – Hematology Department
Contact: Animesh Pardanani, MBBS, PhD
Specialization: Adults. ISM, SSM,
ASM, SM-AHN, and MCL. Will perform
diagnostic bone marrow biopsies for
patients with elevated tryptase or
biopsy-proven cutaneous disease.
Diagnosis, treatment, and research.
NEW YORK
Columbia University Medical Center
New York Presbyterian Hospital
Herbert Irving Pavilion
161 Fort Washington Avenue
Garden Level
New York, NY 10032
Specialization: Adults with advanced
variants: SSM, ASM, SM-AHN, and
MCL. Diagnosis, treatment, and
research. Specialty area-MPNs.
OHIO
University of Cincinnati College of
Medicine
231 Albert Sabin Way, ML#563
Cincinnati, Ohio 45267-0563
Contact: Jonathan Bernstein, MD
Professor of Clinical Medicine
Department of Internal Medicine
Division of Immunology/Allergy
Phone: 513-558-5533
Fax: 513-558-3799
Specialization: All mast cell related
diseases including mastocytosis and
MCAS. Adults and pediatric. Diagnosis,
treatment, and research. Can arrange
bone marrow biopsies. Private family
practice.
Ohio State University
Wexner Medical Center
410 West 10th Avenue,
Columbus, OH 43210
Contact: Charity Fox, MD
Associate Professor Internal Medicine
Pulmonary, Allergy, Critical Care and
Sleep Medicine
614-366-3687
TEXAS
MD Anderson Cancer Center
1515 Holcombe Blvd, Unit 428 Houston, TX 77030
Contact: Srdan Verstovsek, MD, PhD
Associate Professor, Leukemia Department
Phone: 713-792-7305
Fax: 713-794-4297
Specialization: Adults. Advanced variants of SM only: SSM, SM-AHN, ASM and MCL. Diagnosis, treatment, and research.
UTAH
The University of Utah School of Medicine
Department of Internal Medicine, Hematology Division
30 N 1900 E, Room 5C402, Salt Lake City, UT 84132
Contact: Michael Deininger, MD, PhD
Professor of Internal Medicine
Adjunct Professor of Oncological Sciences
Phone: 801-585-3229
Specialization: Adults. Advanced variants of systemic mastocytosis (SM) only: SSM, SM-AHN, ASM and MCL. Diagnosis, treatment, and research.
VIRGINIA
Virginia Commonwealth University Health System
Mc Guire Hall Annex, Rm 4-421
1112 East Clay Street
Richmond, Virginia 23298-0225
Contact: Anne-Marie Irani, MD
Professor of Pediatrics & Internal Medicine
Division of Pediatric Allergy & Immunology
Phone: 804-828-9620
Fax: 804-828-1751
Specialization: Asthma, food allergy, eosinophilic esophagitis,
atopic dermatitis, urticaria, drug and insect allergy, immunodeficiency disorders, human mast cells and basophils.
International
EUROPE
European Competence Network on Mastocytosis (ECNM)
www.ecnm.net
Austria: Medical University of Vienna
Denmark: Odense University Hospital
France: Association Française pour les Initiatives de Recherches sur le Mastocyte et lesMastocytoses (AFIRMM)
Germany
University of Berlin
University of Cologne
Technical University Munich
Ludwig-Maximilians-University Munich
Greece: University Hospital of Athens – Attikon
Italy: University of Naples
The Netherlands: University Hospital Groningen
Poland: University of Gdansk
Portugal: University of Porto
Spain: Centro de Estudios de Mastocitosis de Castilla a Mancha (CLMAst)
Sweden: Karolinska University Hospital, Stockholm
Switzerland: Kantonsspital Aarau, Aarau
Turkey: University of Istanbul
United Kingdom: Guy’s and St. Thoms’ Trust, London
NORTH, CENTRAL and SOUTH AMERICA
American Initiative in Mast Cell Diseases (AIM)
www.aimcd.net
LATIN AMERICA
Aliança Latino-Americana em MAstocitose (ALMA)
President: Ana Mósca de Cequeira, MD
Associate Clinical Professor of Pediatric Dermatology
Hospital Municipal Jesus, Rio de Janeiro, RJ, BRAZIL
Hospital das Clinicas, University of São Paulo,
São Paulo, BRAZIL
Contact: Pedro Giavina-Bianchi Jr. , MD, PhD
Head of Allergy and Immunology Service
Associate Professor
MIDDLE EAST
Israel
Technion – Israel Institute of Technology, Haifa
Emek Medical Center, Afula
Contact: Menachem Rottem, MD, PhD
Head of the Allergy, Asthma and Immunology Service
Clinical Associate Professor
Phone: 972-52-8617823
Meir Medical Center, Kfar Saba
Contact: Alon Hershko, MD, PhD
AUSTRALIA and ASIA
Australian Mastocytosis Society
https://mastocytosis.org.au/
