A Note from the Research Chair

September 2018

Hello Everyone!

Welcome to the Research section of our TMS website.  We are working on many exciting initiatives at TMS and our Research Committee Activities page has a listing of some of our key projects. TMS representatives attended a Mast Cell Activation Syndrome (MCAS) Meeting at the National Institutes of Health in early September, where I presented findings from our recently conducted MCAS Patient Survey. It was so important to have the collective voice of MCAS patients presented during that meeting and rest assured, the message came across with intensity, given the large number of responders to the survey! Our group is planning to publish the survey results, and we’ll keep everyone posted on our progress on that front! We’re excited to have had two articles published recently (on the 2010 Mast Cell Disorder Patient Survey and on Patient Perceptions in Mast Cell Disorders), and have just submitted a third, on International Mast Cell Disease Patient Support and Advocacy, in collaboration with some of our international colleagues. All of these articles highlight the importance of patient participation in research surveys, education, support and advocacy activities. TMS has also been a key player in the work to hold an inaugural meeting of the American Initiative in Mast Cell Diseases (AIM), a network of centers intended to be expanded throughout the Americas. None of these projects would have developed without the support of generous donors, who have helped fund all of the activities of our entirely VOLUNTEER-LED organization! Please consider donating today to allow us to continue our important work together!

Our TMS GENERAL FUND supports TMS initiatives and activities, including our RESEARCH Committee work, EDUCATION and SUPPORT of patients, caregivers and physicians, and our ADVOCACY on Capitol Hill. Our TMS RESEARCH FUND supports the amazing work done by leading mast cell disease researchers. If we work together and support each other, we can make a HUGE difference for our Mast Cell Disease Community in all of these areas!

LET’S START TODAY!

Susan Jennings, PhD

Chair, TMS Research Committee

research@tmsforacure.org

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