Mast Cell CONNECT
In December 2015, Blueprint Medicines established a Mastocytosis Patient Registry with the support of The Mastocytosis Society, Inc. This registry is for patients with any variant of cutaneous or systemic mastocytosis. Patients who participate in this registry are able to review de-identified summaries of responses from other participants.
During the December 2016 American Society of Hematology Annual Meeting, Blueprint Medicines presented the first public report on data from the Mast Cell Connect Registry in a poster titled Systemic Mastocytosis Patient Experience from Mast Cell Connect, the First Patient-Reported Registry for Mastocytosis. The poster can be viewed HERE.
If you would like more information on the Mast Cell Connect Patient Registry or are interested in joining this registry, please see below for relevant links and contact information.
For additional information on the Mast Cell Connect Patient Registry, Registry FAQs and a link to the registry site, please look under the “Get Involved” menu on the www.systemicmastocytosis.com website.
For questions about the goals of the Mast Cell Connect registry, contact the study doctor at
firstname.lastname@example.org or at 617-714-6678.
For all other questions, contact the Mast Cell Connect registry coordinator at