Mast Cell Disorder Patient Registries

Below are links to information on two mastocytosis patient registries. The European Competence Network on Mastocytosis (ECNM) Registry is a research registry coordinated and managed by the ECNM where physicians can enter patient data. The Mast Cell Connect Registry is an online patient registry where patients can enter their own information and view summarized, de-identified responses. If you would like more information on either of these registries, please follow the links below or contact the registry coordinators listed in the links. Neither of these registries is owned or managed by The Mastocytosis Society, Inc.

ECNM Registry

Mast Cell Connect Registry

Emergency Room Guide

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