Research


A Note from the Research Chair (September 2018)

Hello Everyone!

Welcome to the Research section of our TMS website.  We are working on many exciting initiatives at TMS and our Research Committee Activities page has a listing of some of our key projects. TMS representatives attended a Mast Cell Activation Syndrome (MCAS) Meeting at the National Institutes of Health in early September, where I presented findings from our recently conducted MCAS Patient Survey. It was so important to have the collective voice of MCAS patients presented during that meeting and rest assured, the message came across with intensity, given the large number of responders to the survey! Our group is planning to publish the survey results, and we’ll keep everyone posted on our progress on that front! We’re excited to have had two articles published recently (on the 2010 Mast Cell Disorder Patient Survey and on Patient Perceptions in Mast Cell Disorders), and have just submitted a third, on International Mast Cell Disease Patient Support and Advocacy, in collaboration with some of our international colleagues

VIEW FULL NOTE FROM TMS RESEARCH CHAIR >


Research News

All news

Deciphera Pharmaceuticals Presents: Living with Systemic Mastocytosis (SM) WebEx

Oct 03, 2018

On Tuesday, October 9, 2018, at 11 AM, EDT, Deciphera Pharmaceuticals hosted a webinar for the Systemic Mastocytosis (SM) community about Living with Systemic Mastocytosis, and Deciphera Pharmaceuticals’ ongoing clinical trial of DCC-2618, an investigational drug being testing in people with…

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Mast Cell Activation Syndrome Patient Survey

Sep 13, 2018

Mast Cell Activation Syndrome (MCAS) Patient Survey SURVEY NOW CLOSED This survey was open from Friday, August 17 through 10 pm (EDT) on Saturday, August 25, 2018. UPDATE Wow, what a wonderful response! Thank you to everyone who took the…

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Informational Webcast on Avapritinib Clinical Trial Program in Systemic Mastocytosis (SM)

Sep 05, 2018

 Informational Webcast on Avapritinib Clinical Trial Program in Systemic Mastocytosis (SM) On Tuesday, September 18, The Mastocytosis Society and Blueprint Medicines hosted a webinar for the SM community about avapritinib (also known as BLU-285), an investigational medicine for people with systemic…

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Research Committee updates

All activities

TMS Research Committee Activities

Aug 23, 2018

Below is a description of updates and progress on projects related to The Mastocytosis Society (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. Where applicable, click on titles for more information. […]

Nancy Russell, DrPH, Steps Down as Co-Chair of the Research Committee

Feb 01, 2017

Nancy C. Russell, Dr. PH (Doctor of Public Health), who has served as Co-Chair of The Mastocytosis Society (TMS) Research Committee and of the TMS Patient Survey Committee, has retired from The Mastocytosis Society as of January 1, 2017 after nine years of extraordinary service to our members. This is Dr. Russell’s most recent retirement, […]

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Research grants

All grants

TMS Research Grant Offering

Jul 11, 2018

TMS is excited to announce the opening of a new grant offering, presented in collaboration with the American Academy of Allergy, Asthma and Immunology (AAAAI): The 2019 AAAAI/TMS Research Award in Mast Cell Disorders including Mastocytosis and/or Mast Cell Activation Syndrome Application Deadline: October 15, 2018 APPLICATION DETAILS Learn more

2018 TMS Research Grant Awards

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […] Learn more

Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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US Network / Challenges Meetings

MAST CELL DISORDER CHALLENGES MEETINGS AND US NETWORK UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Patient Registries

Resources