Research


A Note from the Research Chair

Our TMS RESEARCH FUND supports the amazing work done by leading mast cell disease researchers. Our TMS GENERAL FUND supports all other TMS initiatives and activities, including EDUCATION and SUPPORT of patients, caregivers and physicians, our ADVOCACY on Capitol Hill and our RESEARCH Committee work. Please consider donating to one or both of these vital funds.

Hello Everyone! Welcome to the Research section of our TMS website. In this section, we will keep…

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Research News

All news

Mast Cell Activation Syndrome Patient Survey

Aug 17, 2018

Calling all MCAS Patients! Mast Cell Activation Syndrome Patient Survey Click HERE to take the survey! This survey will be open from Friday, August 17 through 10 pm (EDT) on Saturday, August 25, 2018. The National Institutes of Health (NIH)…

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The Mastocytosis Society, Inc. Announces Three Research Grants

Feb 14, 2018

The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While…

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Informational Webinar on Avapritinib Clinical Trial Program for Systemic Mastocytosis

Feb 13, 2018

On Thursday, January 25th, 2018, The Mastocytosis Society in collaboration with Blueprint Medicines hosted an informational webcast for the SM patient community about avapritinib (formerly known as BLU-285), an investigational medicine for people with advanced SM. During the webcast, Dr.…

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Research Committee updates

All activities

TMS Research Committee Activities

Jun 01, 2017

Below is a description of updates and progress made by The Mastocytosis Society (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. 2017 American Academy of Allergy Asthma and Immunology (AAAAI) Annual […]

Nancy Russell, DrPH, Steps Down as Co-Chair of the Research Committee

Feb 01, 2017

Nancy C. Russell, Dr. PH (Doctor of Public Health), who has served as Co-Chair of The Mastocytosis Society (TMS) Research Committee and of the TMS Patient Survey Committee, has retired from The Mastocytosis Society as of January 1, 2017 after nine years of extraordinary service to our members. This is Dr. Russell’s most recent retirement, […]

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Research grants

All grants

TMS Research Grant Offering

Jul 11, 2018

TMS is excited to announce the opening of a new grant offering, presented in collaboration with the American Academy of Allergy, Asthma and Immunology (AAAAI): The 2019 AAAAI/TMS Research Award in Mast Cell Disorders including Mastocytosis and/or Mast Cell Activation Syndrome Application Deadline: October 15, 2018 APPLICATION DETAILS Learn more

2018 TMS Research Grant Awards

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […] Learn more

Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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US Network / Challenges Meetings

MAST CELL DISORDER CHALLENGES MEETINGS AND US NETWORK UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Patient Registries

Resources