Research


A Note from the Research Chair

Our TMS RESEARCH FUND supports the amazing work done by leading mast cell disorder researchers. Our TMS GENERAL FUND supports all other TMS initiatives and activities, including EDUCATION and SUPPORT of patients, caregivers and physicians, our ADVOCACY on Capitol Hill and our RESEARCH Committee work. Please consider donating to one or both of these vital funds.

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Hello Everyone! Welcome to the Research section of our new TMS website. I am thrilled to now have…

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Research News

All news

The Stony Brook Chronic Illness Project-Patient Survey

Jul 01, 2017

DO YOU HAVE A CHRONIC ILLNESS? Scientists at Stony Brook University are conducting one of the largest, most important research studies ever undertaken to understand people’s experiences with chronic illness. The knowledge we gain from this study will help scientists…

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Anaphylaxis threatens patients with systemic mastocytosis: A new study separates patients at high risk of anaphylaxis from those at low risk, a help in care

Jun 30, 2017

Anaphylaxis is a sudden, severe hypersensitivity reaction resulting from excessive release of mast cell mediators. Symptoms and signs often involve the skin. A fatal reaction may occur when the airways become obstructed or the cardiovascular system fails. Mastocytosis is characterized…

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Rydapt© Approved for Advanced Systemic Mastocytosis Variants!

Apr 28, 2017

The Mastocytosis Society, Inc. is very excited to announce to our mast cell disorder community that the Food and Drug Administration (FDA) has approved Novartis’ drug, Rydapt©, (midostaurin, previously referred to as PKC412) for the treatment of advanced forms of…

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Research Committee updates

All activities

TMS Research Committee Activities

Jun 01, 2017

Below is a description of updates and progress made by The Mastocytosis Society (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. 2017 American Academy of Allergy Asthma and Immunology (AAAAI) Annual […]

Nancy Russell, DrPH, Steps Down as Co-Chair of the Research Committee

Feb 01, 2017

Nancy C. Russell, Dr. PH (Doctor of Public Health), who has served as Co-Chair of The Mastocytosis Society (TMS) Research Committee and of the TMS Patient Survey Committee, has retired from The Mastocytosis Society as of January 1, 2017 after nine years of extraordinary service to our members. This is Dr. Russell’s most recent retirement, […]

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Research grants

All grants

TMS Research Grant Offering

Sep 05, 2017

Research Grant-Request for Proposals on Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation: The Mastocytosis Society, Inc. (TMS) is pleased to announce that we are accepting research grant proposals for new or ongoing projects to study Pediatric Mastocytosis; the proposal may also address Pediatric Mast Cell Activation Syndrome in addition to Pediatric Mastocytosis. An […] Learn more

TMS Research Grant Awards: 2010 – 2017

Apr 02, 2017

The Mastocytosis Society, Inc. (TMS) awards grant funding for mastocytosis and mast cell activation syndrome (MCAS) research. Below is a list of our award recipients from recent years. This page will be updated as new publications or presentations related to TMS-funded research are identified. TMS thanks all of those listed below and previous awardees for […] Learn more

Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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US Network / Challenges Meetings

MAST CELL DISORDER CHALLENGES MEETINGS AND US NETWORK UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Patient Registries

Resources