Research


A Note from the Research Chair

Our TMS RESEARCH FUND supports the amazing work done by leading mast cell disease researchers. Our TMS GENERAL FUND supports all other TMS initiatives and activities, including EDUCATION and SUPPORT of patients, caregivers and physicians, our ADVOCACY on Capitol Hill and our RESEARCH Committee work. Please consider donating to one or both of these vital funds.

Hello Everyone! Welcome to the Research section of our TMS website. In this section, we will keep…

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Research News

All news

The Mastocytosis Society, Inc. Announces Three Research Grants

Feb 14, 2018

The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While…

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Informational Webinar on Avapritinib Clinical Trial Program for Systemic Mastocytosis

Feb 13, 2018

On Thursday, January 25th, 2018, The Mastocytosis Society in collaboration with Blueprint Medicines hosted an informational webcast for the SM patient community about avapritinib (formerly known as BLU-285), an investigational medicine for people with advanced SM. During the webcast, Dr.…

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ICD-10-CM Codes for Mast Cell Activation Syndrome and Mastocytosis- December 2017

Dec 01, 2017

ICD-10-CM codes for Mast Cell Activation Syndrome (MCAS) were implemented in October 2016 and revised codes for Mastocytosis were implemented in October 2017! (Please visit https://www.cdc.gov/nchs/icd/icd10cm.htm for more details.) Article by: Valerie M. Slee, RN, BSN, TMS Chair Susan Jennings,…

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Research Committee updates

All activities

TMS Research Committee Activities

Jun 01, 2017

Below is a description of updates and progress made by The Mastocytosis Society (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. 2017 American Academy of Allergy Asthma and Immunology (AAAAI) Annual […]

Nancy Russell, DrPH, Steps Down as Co-Chair of the Research Committee

Feb 01, 2017

Nancy C. Russell, Dr. PH (Doctor of Public Health), who has served as Co-Chair of The Mastocytosis Society (TMS) Research Committee and of the TMS Patient Survey Committee, has retired from The Mastocytosis Society as of January 1, 2017 after nine years of extraordinary service to our members. This is Dr. Russell’s most recent retirement, […]

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Research grants

All grants

2018 TMS Research Grant Awards

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […] Learn more

TMS Research Grant Awards: 2010 – 2018

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) awards grant funding for mastocytosis and mast cell activation syndrome (MCAS) research. Below is a list of our award recipients from recent years. This page will be updated as new publications or presentations related to TMS-funded research are identified. TMS thanks all of those listed below and previous awardees for […] Learn more

Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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US Network / Challenges Meetings

MAST CELL DISORDER CHALLENGES MEETINGS AND US NETWORK UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Patient Registries

Resources