Research


A Note from the Research Chair (July 2019)

Hello Mast Cell Disease Community!

Our TMS Research Team continues to work hard on a variety of exciting initiatives! See the Research Committee Activities page for a listing of some of our key projects. We are thrilled to announce that Matthew Hamilton, MD (Brigham and Women’s Hospital/Harvard University, MA), and colleagues, have been awarded the 2019 research grant offered jointly by TMS and the American Academy of Allergy, Asthma and Immunology (AAAAI). The 2019 TMS Mast Cell Activation Syndrome (MCAS) Patient Survey has been a great way for us to share the collective MCAS patient voice. Data from this survey has now been presented at an MCAS Meeting at the National Institutes of Health (September 2018), as a poster at the AAAAI Annual Meeting (February 2019, San Francisco, CA; poster at above link), and most recently at the American Initiative in Mast Cell Diseases (AIM) Inaugural Physician/Investigator Meeting (May 4-5, 2019, Stanford University, CA).

The TMS Research group was also heavily involved in…

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Research News

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TMS 2020 Needs Assessment Survey

Feb 17, 2021

The Mast Cell Disease Society, Inc. 2020 Needs Assessment Survey This survey was conducted from August 2020 – February 2021, and is now CLOSED. THANK YOU to those who shared their Mast Cell Disease-Related Needs and Concerns! The Mast Cell Disease…

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TMS 2020 Mast Cell Disease COVID-19 Survey

Jun 17, 2020

The Mastocytosis Society, Inc. 2020 Patient Survey to Assess Impact of COVID-19 in Patients with Mast Cell Disease   This survey will remain open for the foreseeable future You are invited to participate in a survey being conducted by Middle Tennessee State…

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Mast Cell Activation Syndrome Patient Survey: UPDATE

Jul 16, 2019

Mast Cell Activation Syndrome (MCAS) Patient Survey This survey was open from August 17 – 25, 2018. (THIS SURVEY IS CLOSED) UPDATE-7/16/19 Our MCAS Survey team was excited to have a new poster on the survey data accepted for presentation…

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Research Committee updates

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TMS RESEARCH COMMITTEE PUBLICATIONS AND PRESENTATIONS

Jan 12, 2021

The Mast Cell Disease Society, Inc. (TMS) is proud to provide the following list of articles, book chapters, posters and invited presentations developed or contributed to by our TMS Research Committee and collaborators.   The TouchStone SM Survey Working Group: Mesa RA, Sullivan EM, Dubinski D, Carroll B, Slee VM, Jennings S, Finnerty C, Bohannon […]

TMS Research Committee Activities

Oct 06, 2020

Below is a description of updates and progress on projects related to The Mast Cell Disease Society, Inc. (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. Where applicable, click on titles […]

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Interested in becoming part of our Research Committee? Learn more about the qualifications and Activities!

 

Research grants

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TMS Partners with AAAAI to Offer 2021 Research Grant!

Feb 23, 2021

The Mast Cell Disease Society, Inc. (TMS) is excited to continue our partnership with the American Academy of Allergy, Asthma and Immunology (AAAAI) in offering the 2021 AAAAI/TMS Research Award in Mast Cell Disorders including Mastocytosis and/or Mast Cell Activation Syndrome. The RFP was released in 2020 and due in November 2020. This year’s award […] Learn more

2019 RESEARCH AWARD: TMS Partners with the AAAAI to Fund MCAS Research

Jul 18, 2019

In 2018, The Mastocytosis Society, Inc. (TMS) conducted a survey on Mast Cell Activation Syndrome (MCAS) with over 1700 respondents, which included participants with Mastocytosis or Hereditary Alpha-Tryptasemia (HAT) who may also have MCAS. Nearly 50% of survey respondents also reported physician-diagnosed Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS). Studies into the relationship between MCAS and dysautonomia […] Learn more

American Initiative in Mast Cell Diseases (AIM)/ Challenges Meetings

AMERICAN INITIATIVE IN MAST CELL DISEASES (AIM)/MAST CELL DISORDER CHALLENGES MEETINGS: UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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Patient Registries

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