Research


A Note from the Research Chair (March 2019)

Happy Spring (for those of you in the Northern Hemisphere)!

Our TMS Research Team has been hard at work on a variety of exciting initiatives! See the Research Committee Activities page for a listing of some of our key projects. A big one, the 2019 TMS Mast Cell Activation Syndrome (MCAS) Patient Survey, has been a great way for us to share the collective MCAS patient voice. In September, our Research group attended a Mast Cell Activation Syndrome (MCAS) Meeting at the National Institutes of Health, where we presented data from this survey, and data was also recently presented as a poster at the American Academy of Allergy, Asthma and Immunology (AAAAI) Annual Meeting (February 2019, San Francisco, CA)-see the link above for more information and a link to the survey poster.

Last October, I attended the…

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Research News

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Pharmaceutical Company Patient Advisory Board: Advanced Systemic Mastocytosis

Apr 09, 2019

We at TMS strive to keep patients and families informed of opportunities that may help improve quality of life for individuals with systemic mastocytosis.   With that in mind, we would like to inform you about an opportunity to share…

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Mast Cell Activation Syndrome Patient Survey: UPDATE

Mar 21, 2019

Mast Cell Activation Syndrome (MCAS) Patient Survey (THIS SURVEY IS CLOSED) This survey was open from Friday, August 17 through 10 pm (EDT) on Saturday, August 25, 2018. UPDATE-3/21/19 The Mastocytosis Society MCAS Survey team presented a poster on the…

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Deciphera Pharmaceuticals Presents: Living with Systemic Mastocytosis (SM) WebEx

Oct 03, 2018

VIDEO NOW AVAILABLE ONLINE! On Tuesday, October 9, 2018, Deciphera Pharmaceuticals hosted a webinar for the Systemic Mastocytosis (SM) community about Living with Systemic Mastocytosis, and Deciphera Pharmaceuticals’ ongoing clinical trial of DCC-2618, an investigational drug being testing in people with…

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Research Committee updates

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TMS Research Committee Activities

Mar 21, 2019

Below is a description of updates and progress on projects related to The Mastocytosis Society (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. Where applicable, click on titles for more information. […]

Nancy Russell, DrPH, Steps Down as Co-Chair of the Research Committee

Feb 01, 2017

Nancy C. Russell, Dr. PH (Doctor of Public Health), who has served as Co-Chair of The Mastocytosis Society (TMS) Research Committee and of the TMS Patient Survey Committee, has retired from The Mastocytosis Society as of January 1, 2017 after nine years of extraordinary service to our members. This is Dr. Russell’s most recent retirement, […]

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Research grants

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TMS Research Grant Offering

Feb 11, 2019

The 2019 TMS grant offering, presented in collaboration with the American Academy of Allergy, Asthma and Immunology (AAAAI), is now closed to new applications. The 2019 AAAAI/TMS Research Award in Mast Cell Disorders including Mastocytosis and/or Mast Cell Activation Syndrome Application Deadline: March 15, 2019   Learn more

2018 TMS Research Grant Awards

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […] Learn more

American Initiative in Mast Cell Diseases (AIM)/ Challenges Meetings

AMERICAN INITIATIVE IN MAST CELL DISEASES (AIM)/MAST CELL DISORDER CHALLENGES MEETINGS: UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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Patient Registries

Resources