Pharmaceutical Company Patient Advisory Board: Advanced Systemic Mastocytosis

Apr 09, 2019

We at TMS strive to keep patients and families informed of opportunities that may help improve quality of life for individuals with systemic mastocytosis.

 

With that in mind, we would like to inform you about an opportunity to share your experiences related to advanced systemic mastocytosis (SM) management and care.  The pharmaceutical company, Blueprint Medicines, is looking for a few patients and caregivers to participate in a 4-hour meeting the morning of May 1, 2019 in Foster City-San Mateo, California, prior to our 2019 TMS Patient & Caregiver Conference. The company will arrange and pay for transportation, one night’s hotel stay and will provide a modest honorarium.

The purpose of the meeting is to gain insights into the advanced SM experience of patients to better understand challenges and decision points from the patient perspective.

If you are US-based, have been diagnosed with advanced SM, or are a primary caregiver and would like to participate in this advisory board, please reach out to Jaclyn Nullman, of VOZ Advisors, at jnullman@vozadvisors.com or 212-620-2776 for more information.