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Chair Emeritus (ret.)
I first served as the TMS Vice Chair from 2002-2009, then assumed the Chair position when my dear friend Rita Barlow stepped down due to health issues. I have also served as Liaison to the Medical Advisory Board, Research Committee, Pediatric Committee, and to the MPN and Smoldering Mastocytosis Committee. I Co-Chair the Drug Shortage Committee with Emily Menard. I obtained a Bachelor of Science in Nursing Degree from Syracuse University, summa cum laude, in 1975, and have 40 years of experience as a pediatric nurse in major hospitals including UCONN Health Center/John Dempsey Hospital Pediatric ICU and NICU, Upstate Medical Center in Syracuse, NY in Pediatrics and Pediatric ICU, St. Peter’s Hospital Albany, NY, Children’s Hospital of Philadelphia, and UMASS. My experience included many years of pediatric intensive care and pediatric hematology oncology. I also was an instructor in Pediatrics, Pediatric ICU, Fundamentals of Nursing and Maternal Child Nursing at Maria College in Albany, NY. Most recently, I was a pediatric triage nurse for Night Nurse of Framingham, MA. I am a sitting member of the Mast Cell Disorders Committee of the American Academy of Allergy, Asthma and Immunology. I collaborate with mast cell disorder patient organizations all over the world, their members and physicians. I work extensively with the TMS Research Committee, and am in touch with patients and physicians every day, as my disease allows.
I am fortunate to be happily married to Andrew Slee (41 years and counting!), have three wonderful adult children, and three amazing grandsons! I have had MCAS for many years, probably since age 6, but I was not diagnosed with a mast cell disorder until age 34. Currently, I am 63 years old. My own health has deteriorated in the last few years, and has made it necessary for me to go on disability. While I very much miss my pediatric patients, I enjoy working with the mast cell community! TMS is a wonderful organization, full of giving and supportive people who care so much for each other and for each of the members.
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