Archives

The Mastocytosis Society, Inc. 2010 Survey on Mast Cell Disorders UPDATE

Aug 23, 2018

The Mastocytosis Society, Inc. (TMS) is happy to announce the publication of a second report of results from our 2010 Mast Cell Disorder Patient Survey: Russell N, Jennings S, Jennings B, Slee V, Sterling L, Castells M, et al. The Mastocytosis Society Survey on Mast Cell Disorders: Part 2-Patient Clinical Experiences and Beyond. J Allergy […]

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TMS Mast Cell Activation Syndrome Initiatives Update

Jun 30, 2018

Good day, The Board and committee volunteers at TMS have been increasingly aware of frustrations arising in several areas, specifically with difficulty accessing care and for both recognition and validation of Mast Cell Activation Syndrome (MCAS). Please know that we share your concerns and these issues are foremost in our minds every day. We are […]

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INSPIRE Forum & Online Communities

Jun 18, 2018

We are excited to announce that The Mastocytosis Society, Inc (TMS) launched an online community called Mast Cell Diseases Unite on Inspire. MORE INFO…

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Sharing a Patient Perspective at Deciphera Pharmaceuticals

Apr 17, 2018

On February 28, 2018, in honor of Rare Disease Day, The Mastocytosis Society provided the employees at Deciphera Pharmaceuticals with the opportunity to hear first-hand from a patient perspective what it’s like to live with systemic mastocytosis. Janice Chiappione, a local patient living with systemic mastocytosis, visited the company and spoke to the team about […]

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The Mastocytosis Society, Inc. Announces Three Research Grants

Feb 14, 2018

The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While initially, we thought we would only be able to support one research study, thanks to […]

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Announcing the new TMS Physician Database!

Feb 13, 2018

NEWS UPDATE FROM TMS! Exciting News! TMS proudly announces the opening of the new TMS PHYSICIAN DATABASE!!! This online tool, featured on our website on the upper navigation field next to Membership, will be open for patients, caregivers and health care professionals to search for physicians who have self-enrolled and indicated that they will provide […]

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Informational Webinar on Avapritinib Clinical Trial Program for Systemic Mastocytosis

Feb 13, 2018

On Thursday, January 25th, 2018, The Mastocytosis Society in collaboration with Blueprint Medicines hosted an informational webcast for the SM patient community about avapritinib (formerly known as BLU-285), an investigational medicine for people with advanced SM. During the webcast, Dr. Andy Boral, Chief Medical Officer of Blueprint Medicines, shared an update on the avapritinib program, […]

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Online Survey for Individuals with Systemic Mastocytosis

Feb 12, 2018

A big thank you to those who have expressed an interest in this survey! Enrollment is now completely full. (This notice was accidentally backdated as published on February 12, 2018, but was actually posted February 21, 2018. We apologize for any confusion.)

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2018 TMS Research Grant Awards

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […]

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TMS Research Grant Awards: 2010 – 2018

Feb 12, 2018

The Mastocytosis Society, Inc. (TMS) awards grant funding for mastocytosis and mast cell activation syndrome (MCAS) research. Below is a list of our award recipients from recent years. This page will be updated as new publications or presentations related to TMS-funded research are identified. TMS thanks all of those listed below and previous awardees for […]

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