Archives

TMS 2020 Mast Cell Disease COVID-19 Survey

May 29, 2020

The Mastocytosis Society, Inc. 2020 Patient Survey to Assess Impact of COVID-19 in Patients with Mast Cell Disease   This survey will remain open for the foreseeable future You are invited to participate in a survey being conducted by Middle Tennessee State University (MTSU) researchers, in collaboration with The Mastocytosis Society, Inc. (TMS), designed to assess the […]

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COVID-19

May 26, 2020

COVID-19 STATEMENT FROM THE MASTOCYTOSIS SOCIETY, INC. (TMS) AND PHYSICIANS FROM TMS MEDICIAL ADVISORY BOARD March 14, 2020 There have been many questions from patients affected by mast cell disease about the new coronavirus and if there are any precautions or changes in their medical management that should be undertaken. The Mastocytosis Society, Inc. (TMS) […]

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Zantac Announcement

Apr 03, 2020

Good day, We hope you are all well and staying safe by practicing social distancing. For those who may not know, the FDA has withdrawn all prescription, generic and over the counter (OTC) Zantac® (ranitidine) from the market effective April 1, 2020. https://www.fda.gov/news-events/press-announcements/fda-requests-removal-all-ranitidine-products-zantac-market We recognize that this has deeply affected many members of our mast […]

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A New Injection to Treat Hives

Nov 07, 2019

https://www.rxwiki.com/news-article/fda- FDA approves Quzyttir (cetirizine) injection to treat hives  

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2019 RESEARCH AWARD: TMS Partners with the AAAAI to Fund MCAS Research

Jul 18, 2019

In 2018, The Mastocytosis Society, Inc. (TMS) conducted a survey on Mast Cell Activation Syndrome (MCAS) with over 1700 respondents, which included participants with Mastocytosis or Hereditary Alpha-Tryptasemia (HAT) who may also have MCAS. Nearly 50% of survey respondents also reported physician-diagnosed Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS). Studies into the relationship between MCAS and dysautonomia […]

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Mast Cell Activation Syndrome Patient Survey: UPDATE

Jul 16, 2019

Mast Cell Activation Syndrome (MCAS) Patient Survey This survey was open from August 17 – 25, 2018. (THIS SURVEY IS CLOSED) UPDATE-7/16/19 Our MCAS Survey team was excited to have a new poster on the survey data accepted for presentation during the American Initiative in Mast Cell Diseases (AIM) Inaugural Investigator Meeting in May 2019 […]

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Pharmaceutical Company Patient Advisory Board: Advanced Systemic Mastocytosis

Jul 16, 2019

We at TMS strive to keep patients and families informed of opportunities that may help lead to improvements of quality of life for individuals affected by mast cell disease. With that in mind, we are sometimes able to offer opportunities to share your experiences related to your or a loved one’s disease. Immediately prior to […]

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Mast Cell Disorder Challenges Meetings and American Initiative in Mast Cell Diseases (AIM)

May 21, 2019

UPDATE-May 2019: Partnered with our TMS Patient/Caregiver Conference (May 1-3, 2019), TMS and the American Initiative in Mast Cell Diseases (AIM) Steering Committee worked together to host the Inaugural AIM Physician/Investigator Conference (May 4-5, 2019).  Both conferences were held in the San Francisco Bay Area. The intention of AIM is to develop a pan-American mast […]

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TMS Research Committee Activities

Mar 21, 2019

Below is a description of updates and progress on projects related to The Mastocytosis Society (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. Where applicable, click on titles for more information. […]

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Cheyanne Perry

Feb 07, 2019

A woman stood amongst the rubble, solemnly watching as the emergency crew prepared her husband for transport. An officer contorted his face with a hardened expression, delivering the unfortunate news. It was assumed he fell asleep behind the wheel. The predicted outcome was grim. Despite numerous miscarriages, the young newlyweds were unknowingly parents the day […]

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