A Mother’s Road to Diagnosis

Jan 10, 2022

January 2022 I’m Sandra, and my story began 20 years ago. My first drive to the ER with my daughter was one of my most scariest moments. She was covered in hives and went into anaphylaxis. What was happening to my daughter? Did she eat something she was allergic to? Did she use a new […]

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FDA Patient Listening Session on Mastocytosis

Nov 02, 2021

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Dawnique’s Story

Oct 06, 2021

Hi, my name is Dawnique. I live in New Mexico. I have Mast Cell Activation Syndrome. It is thought that I’ve had it for years but I didn’t become very sick with it until December 2020. I was diagnosed with MCAS January 2021. My worst symptoms are: Anaphylaxis, dermatographia, swelling, hives, rashes, diarrhea, gi pain, […]

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Sarah’s Journey to Diagnosis

Oct 01, 2021

In 2011 I was diagnosed with a Carcinoid Cancer Tumour in my appendix they call it Neuroendocrine Cancer now. In 2013 I developed symptoms of asthma, flushing, tachycardia and severe abdominal cramping, throat swelling these symptoms were very similar to Carcinoid Syndrome but once it was ruled out a doctor suspected Mastocytosis I then had […]

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Director of Patient Programs – Ivy Lopez

Jul 19, 2021

Welcome Ivy Lopez, Director of Patient Programs! It is with great excitement we announce that Ivy Lopez will join TMS in August as the Director of Patient Programs. In this new role, Ivy will be responsible for leading the overall programmatic delivery of education and learning for our community of patients, caregivers, and health care providers. […]

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In Memory of TMS Founding Member Rita Barlow

Apr 01, 2021

This week we lost a dear friend and advocate of the mast cell disease community, Rita Barlow. We are deeply saddened by this loss given her unwavering commitment to patients and TMS for many years. Rita served as TMS Chair from 2002-2009, Vice Chair 2009-2018 and as director emeritus after her retirement. Over the years, […]

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TMS Partners with AAAAI to Offer 2021 Research Grant!

Feb 23, 2021

The Mast Cell Disease Society, Inc. (TMS) is excited to continue our partnership with the American Academy of Allergy, Asthma and Immunology (AAAAI) in offering the 2021 AAAAI/TMS Research Award in Mast Cell Disorders including Mastocytosis and/or Mast Cell Activation Syndrome. The RFP was released in 2020 and due in November 2020. This year’s award […]

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TMS 2020 Needs Assessment Survey

Feb 17, 2021

The Mast Cell Disease Society, Inc. 2020 Needs Assessment Survey This survey was conducted from August 2020 – February 2021, and is now CLOSED. THANK YOU to those who shared their Mast Cell Disease-Related Needs and Concerns! The Mast Cell Disease Society, Inc. (TMS; DBA The Mastocytosis Society, Inc.) launched The TMS 2020 Mast Cell Disease […]

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Jan 12, 2021

The Mast Cell Disease Society, Inc. (TMS) is proud to provide the following list of articles, book chapters, posters and invited presentations developed or contributed to by our TMS Research Committee and collaborators.   The TouchStone SM Survey Working Group: Mesa RA, Sullivan EM, Dubinski D, Carroll B, Slee VM, Jennings S, Finnerty C, Bohannon […]

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TMS Research Committee Activities

Oct 06, 2020

Below is a description of updates and progress on projects related to The Mast Cell Disease Society, Inc. (TMS) Research Committee. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. Where applicable, click on titles […]

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