Apr 17, 2018
On February 28, 2018, in honor of Rare Disease Day, The Mastocytosis Society provided the employees at Deciphera Pharmaceuticals with the opportunity to hear first-hand from a patient perspective what it’s like to live with systemic mastocytosis. Janice Chiappione, a local patient living with systemic mastocytosis, visited the company and spoke to the team about […]Feb 14, 2018
The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While initially, we thought we would only be able to support one research study, thanks to […]
Feb 13, 2018
NEWS UPDATE FROM TMS! Exciting News! TMS proudly announces the opening of the new TMS PHYSICIAN DATABASE!!! This online tool, featured on our website on the upper navigation field next to Membership, will be open for patients, caregivers and health care professionals to search for physicians who have self-enrolled and indicated that they will provide […]
Feb 13, 2018
On Thursday, January 25th, 2018, The Mastocytosis Society in collaboration with Blueprint Medicines hosted an informational webcast for the SM patient community about avapritinib (formerly known as BLU-285), an investigational medicine for people with advanced SM. During the webcast, Dr. Andy Boral, Chief Medical Officer of Blueprint Medicines, shared an update on the avapritinib program, […]Feb 12, 2018
A big thank you to those who have expressed an interest in this survey! Enrollment is now completely full. (This notice was accidentally backdated as published on February 12, 2018, but was actually posted February 21, 2018. We apologize for any confusion.)Feb 12, 2018
The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […]Feb 12, 2018
The Mastocytosis Society, Inc. (TMS) awards grant funding for mastocytosis and mast cell activation syndrome (MCAS) research. Below is a list of our award recipients from recent years. This page will be updated as new publications or presentations related to TMS-funded research are identified. TMS thanks all of those listed below and previous awardees for […]
Feb 10, 2018
This research grant offering is now closed! The Mastocytosis Society, Inc. (TMS) will announce research grant offerings here. Please check back in the future for any open Requests for Proposals.
Jan 01, 2018
Can You Find Love and Friendship Online? Articles About Our Friend Olive… In the late 1990s, a diagnosis of mastocytosis left most with fear of the true unknown. My family, like many others, didn’t have a personal computer in our home. Computers were for work. I had been unable to work for some time, but […]
Dec 01, 2017
ICD-10-CM codes for Mast Cell Activation Syndrome (MCAS) were implemented in October 2016 and revised codes for Mastocytosis were implemented in October 2017! (Please visit https://www.cdc.gov/nchs/icd/icd10cm.htm for more details.) Article by: Valerie M. Slee, RN, BSN, TMS Chair Susan Jennings, PhD, TMS Research Chair ICD-10-CM Code Proposals for Mast Cell Disorders-Background Back as far as […]