Aug 17, 2018
Calling all MCAS Patients! Mast Cell Activation Syndrome Patient Survey Click HERE to take the survey! This survey will be open from Friday, August 17 through 10 pm (EDT) on Saturday, August 25, 2018. The National Institutes of Health (NIH) have called for a workshop on MCAS on September 7, 2018. Esteemed physicians, a number […]
Jul 11, 2018
TMS is excited to announce the opening of a new grant offering, presented in collaboration with the American Academy of Allergy, Asthma and Immunology (AAAAI): The 2019 AAAAI/TMS Research Award in Mast Cell Disorders including Mastocytosis and/or Mast Cell Activation Syndrome Application Deadline: October 15, 2018 APPLICATION DETAILS
Jun 30, 2018
Good day, The Board and committee volunteers at TMS have been increasingly aware of frustrations arising in several areas, specifically with difficulty accessing care and for both recognition and validation of Mast Cell Activation Syndrome (MCAS). Please know that we share your concerns and these issues are foremost in our minds every day. We are […]
Jun 18, 2018
We are excited to announce that The Mastocytosis Society, Inc (TMS) recently launched a new online community called Mast Cell Diseases Unite on Inspire. MORE INFO…
Apr 17, 2018
On February 28, 2018, in honor of Rare Disease Day, The Mastocytosis Society provided the employees at Deciphera Pharmaceuticals with the opportunity to hear first-hand from a patient perspective what it’s like to live with systemic mastocytosis. Janice Chiappione, a local patient living with systemic mastocytosis, visited the company and spoke to the team about […]Feb 14, 2018
The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While initially, we thought we would only be able to support one research study, thanks to […]
Feb 13, 2018
NEWS UPDATE FROM TMS! Exciting News! TMS proudly announces the opening of the new TMS PHYSICIAN DATABASE!!! This online tool, featured on our website on the upper navigation field next to Membership, will be open for patients, caregivers and health care professionals to search for physicians who have self-enrolled and indicated that they will provide […]
Feb 13, 2018
On Thursday, January 25th, 2018, The Mastocytosis Society in collaboration with Blueprint Medicines hosted an informational webcast for the SM patient community about avapritinib (formerly known as BLU-285), an investigational medicine for people with advanced SM. During the webcast, Dr. Andy Boral, Chief Medical Officer of Blueprint Medicines, shared an update on the avapritinib program, […]Feb 12, 2018
A big thank you to those who have expressed an interest in this survey! Enrollment is now completely full. (This notice was accidentally backdated as published on February 12, 2018, but was actually posted February 21, 2018. We apologize for any confusion.)Feb 12, 2018
The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. These grants were made possible by generous donations from the Catalano Family through Wyatt’s Warriors, and from Karen and Jim Houghton. TMS congratulates our 2018 Research Grant recipients! 2018 […]