Sep 12, 2020
It is with great excitement, that we announce the arrival of The Mast Cell Disease Society’s first-ever Executive Director – Lauren Denton. After completing a rigorous search process over the last three months we are thrilled for Lauren to begin her work with us on Monday, September 14th. Lauren joins with a decade of experience […]
Aug 11, 2020
The Mast Cell Disease Society, Inc. 2020 Needs Assessment Survey URGENT!: Share Your Mast Cell Disease-Related Needs and Concerns! The Mast Cell Disease Society, Inc. (TMS; DBA The Mastocytosis Society, Inc.) has launched The TMS 2020 Mast Cell Disease Needs Assessment Survey in collaboration with researchers from Middle Tennessee State University. Responses to this […]
Jun 17, 2020
The Mastocytosis Society, Inc. 2020 Patient Survey to Assess Impact of COVID-19 in Patients with Mast Cell Disease This survey will remain open for the foreseeable future You are invited to participate in a survey being conducted by Middle Tennessee State University (MTSU) researchers, in collaboration with The Mastocytosis Society, Inc. (TMS), designed to assess the […]
May 26, 2020
COVID-19 STATEMENT FROM THE MASTOCYTOSIS SOCIETY, INC. (TMS) AND PHYSICIANS FROM TMS MEDICIAL ADVISORY BOARD March 14, 2020 There have been many questions from patients affected by mast cell disease about the new coronavirus and if there are any precautions or changes in their medical management that should be undertaken. The Mastocytosis Society, Inc. (TMS) […]
Apr 03, 2020
Good day, We hope you are all well and staying safe by practicing social distancing. For those who may not know, the FDA has withdrawn all prescription, generic and over the counter (OTC) Zantac® (ranitidine) from the market effective April 1, 2020. https://www.fda.gov/news-events/press-announcements/fda-requests-removal-all-ranitidine-products-zantac-market We recognize that this has deeply affected many members of our mast […]Nov 07, 2019
https://www.rxwiki.com/news-article/fda- FDA approves Quzyttir (cetirizine) injection to treat hives
Jul 18, 2019
In 2018, The Mastocytosis Society, Inc. (TMS) conducted a survey on Mast Cell Activation Syndrome (MCAS) with over 1700 respondents, which included participants with Mastocytosis or Hereditary Alpha-Tryptasemia (HAT) who may also have MCAS. Nearly 50% of survey respondents also reported physician-diagnosed Dysautonomia/Postural Orthostatic Tachycardia Syndrome (POTS). Studies into the relationship between MCAS and dysautonomia […]
Jul 16, 2019
Mast Cell Activation Syndrome (MCAS) Patient Survey This survey was open from August 17 – 25, 2018. (THIS SURVEY IS CLOSED) UPDATE-7/16/19 Our MCAS Survey team was excited to have a new poster on the survey data accepted for presentation during the American Initiative in Mast Cell Diseases (AIM) Inaugural Investigator Meeting in May 2019 […]
Jul 16, 2019
We at TMS strive to keep patients and families informed of opportunities that may help lead to improvements of quality of life for individuals affected by mast cell disease. With that in mind, we are sometimes able to offer opportunities to share your experiences related to your or a loved one’s disease. Immediately prior to […]
May 21, 2019
UPDATE-May 2019: Partnered with our TMS Patient/Caregiver Conference (May 1-3, 2019), TMS and the American Initiative in Mast Cell Diseases (AIM) Steering Committee worked together to host the Inaugural AIM Physician/Investigator Conference (May 4-5, 2019). Both conferences were held in the San Francisco Bay Area. The intention of AIM is to develop a pan-American mast […]