Mast Cell Disease Treatment & Research Centers

Medical and Research Centers that Treat Patients with Mast Cell Diseases

Please note carefully any clarification of what each center specializes in. For example, some centers only treat patients with biopsy confirmed mastocytosis, some centers only treat aggressive or malignant disease, some treat only adults or children, and many also treat mast cell activation syndrome / mast cell activation disorders (MCAS / MCAD). All centers listed can do the entire workup including evaluation, physical exam, mediator testing, and bone marrow biopsy with flow cytometry and appropriate stains for c-kit D816V mutation, tryptase, and expression of CD2 and CD25  antigen markers. Please be very clear when making your appointment to ask what you can expect to occur during your visit.

United States of America


California

Stanford Cancer Center

875 Blake Wilbur Drive, Room 2327B

Stanford, CA 94305-5821

Contact: Jason Gotlib MD, Associate Professor of Medicine (Hematology), Director, Stanford Hematology Fellowship Program, Director, MPN Center

Stanford Cancer Institute

875 Blake Wilbur Drive, Room 2324

Stanford, CA 94395-5821

Phone: 650-498-6000 Fax: 650-724-5203

Email: jason.gotlib@stanford.edu

Specialization: Biopsy proven only; including systemic mastocytosis (SM) only, aggressive SM and mast cell leukemia. Adults. Diagnostic, treatment, and research.


Colorado

Blood Cancer / Bone Marrow Transplant Program

University of Colorado Hospital

1665 Aurora Ct, Rm 2257

Aurora, CO 80045

Contact: William A. Robinson, MD, PhD

Professor, Division of Medical Oncology/Rella and Monroe Rifkin, Endowed Chair

Email: William.Robinson@ucdenver.edu

Pheon: 720-848-2869  Fax: 720-848-0704

Specialization: All mast cell related diseases including systemic mastocytosis (SM), aggressive systemic mastocytosis (ASM) and mast cell leukemia (MCL). Adults. Diagnostic (bone marrow biopsy can be arranged), treatment, and research


Maryland

National Institutes of Health: National Institute of Allergy and Infectious Diseases NIH, NIAID

Building 10, Room 11C207

10 Center Drive – MSC1881

Bethesda, MD 20892-1881

Contact: Dean D. Metcalfe, MD, Chief, Laboratory of Allergic Diseases

Email: dmetcalfe@niaid.nih.gov

Phone: 301-496-2165 Fax: 301-480-8384

Contact: Todd Wilson, DO

Email: twilson@niaid.nih.gov

Contact: Melody Carter, MD, Pediatrics

Email: mcarter@niaid.nih.gov

Specialization: Referrals only. Biopsy proven only; including systemic mastocytosis (SM) only, aggressive SM and mast cell leukemia. Adults and pediatric. Diagnostic, treatment, and research. Bone marrow biopsies. Also adult idiopathic anaphylaxis.


Massachusetts

Center of Excellence for Mastocytosis (and Mast Cell Activation Disorders) at Brigham and Women’s Hospital and Dana Farber Cancer Institute, Brigham and Women’s Hospital

850 Boylston St. Suite 450

Chestnut Hill, MA 02467

Director: Mariana Castells, MD, PhD

Email: mcastells@partners.org

Phone: 617-732-9850 Fax: 617-731-2748

Contact: Norton J. Greenberger, MD, GI

Email: ngreenberger@partners.org

Phone: 617-732-6389 Fax: 617-264-5277

Contact: Richard Horan, MD

Email: rhoran@partners.org

Phone: 617-732-9850 Fax: 617-731-2748

Contact: Daniel DeAngelo, MD, PhD

Email: daniel_deangelo@dfci.harvard.edu

Phone: 617-632-6028

Address: DFCI, 450 Brookline Ave., Dana D1B30

Boston, MA 02215

Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, treatment, and research. Can arrange bone marrow biopsies.

Tufts University School of Medicine

136 Harrison Avenue

Boston, MA 02111

Contact: Theoharis Theoharides, MD, PhD

Professor of Pharm. and Internal Medicine

Email: Theoharis.theoharides@Tufts.edu

Phone: 617-636-6866 Fax: 617-636-2456

Does not see patients in clinic.


Michigan

Myeloproliferative Neoplasms and Systemic Mastocytosis Clinic, University of Michigan Comprehensive Cancer Center

1500 East Medical Center Drive

Ann Arbor, MI 48109

Phone (new patient coordinator): 734-232-2071

Phone (clinic): 734-647-8901  Fax: 734-232-1328

Specialization: Biopsy-proven only – systemic mastocytosis (indolent, smoldering, aggressive SM), SM-AHNMD, and mast cell leukemia. Will perform disgnostic marrows for patients with elevated tryptase or biopsy-proven cutaneous disease. Adults. Diagnostic, treatment, and research.


Minnesota

Mayo Clinic Center of Excellence for Mast Cell and Eosinophil Disorders

Mayo Clinic- Allergy Department

W15-B Mayo Clinic

200 SW 1st St.

Rochester, MN 55905

Co-Director: Joseph Butterfield, MD

Email: butterfield.joseph@mayo.edu

Co-Director: Catherine Weiler, MD

Email: weiler.catherine@mayo.edu

Phone: 507-284-9077 Fax: 507-284-0902

Mayo Clinic – Hematology Department

Contact: Ayalew Tefferi, MD and Animesh Pardanani M.B.B.S., PhD

Phone: (507) 284-5363

Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, bone marrow biopsy, treatment, and research.

University of Minnesota, Program for Mast Cell Diseases

Website: http://mastcell.umn.edu

Contact: Lawrence B. Afrin, MD

(program director; sees adult mast cell disease patients)

Email: afrinl@umn.edu

Contact: Celalettin Ustun, MD

(sees adult advanced / aggressive mastocytosis patients)

Email: custun@umn.edu

University of Minnesota

Division of Hematology, Oncology & Transplantation

420 Delaware St. SE, MMC 480

Minneapolis, MN 55455

Phone: 612-624-0123  Fax: 612-625-6919

Specialization: All mast cell-related diseases. Adult and pediatric patients. Diagnostic and treatment services and basic and clinical research.


Ohio

University of Cincinnati and Bernstein Allergy Group and Research Center

8444 Winton Rd.

Cincinnati, OH 45231

Contact: Dr. Jonathan Bernstein, MD

Email: bernstja@ucmail.uc.edu

Phone: 513-931-0775 Fax: 513-981-0779

Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, treatment, and research. Can arrange bone marrow biopsies. Private family practice.


Texas

MD Anderson Cancer Center

1515 Holcombe Blvd, Unit 428

Houston, TX 77030

Contact: Srdan Verstovsek, MD, PhD

Associate Professor, Leukemia Department

Email: sverstov@mdanderson.org

Phone: 713-792-7305 Fax: 713-794-4297

Specialization: Systemic mastocytosis (SM) only, aggressive SM and mast cell leukemia. Adults. Diagnostic, treatment, and research.


Utah

University of Utah School of Medicine, Department of Internal Medicine, Hematology Division

30 N 1900 E, Room 5C402

Salt Lake City, UT 84132

Contact: Michael Deininger, MD, PhD

Phone: 801-585-3229

Email: michael.deininger@hsc.utah.edu

Specialization: Bone marrow biopsy confirmed mastocytosis, aggressive disease and mast cell leukemia.


Virginia

Virginia Commonwealth University

P.O. Box 980263

1250 East Marshall St.

Richmond, VA 23298

Contact: Dr. LarrySchwartz, MD, PhD

Internal Medicine: Rheumatology, Allergy, and Immunology

Email: lbschwar@vcu.edu

Phone: 804-828-9685 Fax: 804-828-0283

Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, treatment, and research. Can arrange bone marrow biopsies.


Europe (Active Centers)


Austria

Medical University of Vienna


Brazil

University of Sao Paulo, Sao Paulo


Denmark

Odense University Hospital


France

Association Française pour les Initiatives de Recherches sur le

Mastocyte et lesMastocytoses (AFIRMM)


Germany

University of Berlin

University of Cologne

Technical University Munich

Ludwig-Maximilians-University Munich


Greece

University Hospital of Athens – Attikon


Italy

University of Naples


Israel

Technion- Israel Institute of Technology, Haifa


The Netherlands

University Hospital Groningen


Poland

University of Gdansk


Portugal

University of Porto


Spain

Centro de Estudios de Mastocitosis de Castilla a Mancha (CLMAst)


Sweden

Karolinska University Hospital, Stockholm


Switzerland

Kantonsspital Aarau, Aarau


Turkey

University of Istanbul


United Kingdom

Guy’s and St. Thoms’ Trust, London

 

Note: For additional current information on specialities and contact with each European center visit: www.ecnm.net .

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