Mast Cell Disease Treatment & Research Centers
Medical and Research Centers that Treat Patients with Mast Cell Diseases
Please note carefully any clarification of what each center specializes in. For example, some centers only treat patients with biopsy confirmed mastocytosis, some centers only treat aggressive or malignant disease, some treat only adults or children, and many also treat mast cell activation syndrome / mast cell activation disorders (MCAS / MCAD). All centers listed can do the entire workup including evaluation, physical exam, mediator testing, and bone marrow biopsy with flow cytometry and appropriate stains for c-kit D816V mutation, tryptase, and expression of CD2 and CD25 antigen markers. Please be very clear when making your appointment to ask what you can expect to occur during your visit.
United States of America
California
Stanford Cancer Center
875 Blake Wilbur Drive, Room 2327B
Stanford, CA 94305-5821
Contact: Jason Gotlib MD, Associate Professor of Medicine (Hematology), Director, Stanford Hematology Fellowship Program, Director, MPN Center
Stanford Cancer Institute
875 Blake Wilbur Drive, Room 2324
Stanford, CA 94395-5821
Phone: 650-498-6000 Fax: 650-724-5203
Email: jason.gotlib@stanford.edu
Specialization: Biopsy proven only; including systemic mastocytosis (SM) only, aggressive SM and mast cell leukemia. Adults. Diagnostic, treatment, and research.
Colorado
Blood Cancer / Bone Marrow Transplant Program
University of Colorado Hospital
1665 Aurora Ct, Rm 2257
Aurora, CO 80045
Contact: William A. Robinson, MD, PhD
Professor, Division of Medical Oncology/Rella and Monroe Rifkin, Endowed Chair
Email: William.Robinson@ucdenver.edu
Pheon: 720-848-2869 Fax: 720-848-0704
Specialization: All mast cell related diseases including systemic mastocytosis (SM), aggressive systemic mastocytosis (ASM) and mast cell leukemia (MCL). Adults. Diagnostic (bone marrow biopsy can be arranged), treatment, and research
Maryland
National Institutes of Health: National Institute of Allergy and Infectious Diseases NIH, NIAID
Building 10, Room 11C207
10 Center Drive – MSC1881
Bethesda, MD 20892-1881
Contact: Dean D. Metcalfe, MD, Chief, Laboratory of Allergic Diseases
Email: dmetcalfe@niaid.nih.gov
Phone: 301-496-2165 Fax: 301-480-8384
Contact: Todd Wilson, DO
Email: twilson@niaid.nih.gov
Contact: Melody Carter, MD, Pediatrics
Email: mcarter@niaid.nih.gov
Specialization: Referrals only. Biopsy proven only; including systemic mastocytosis (SM) only, aggressive SM and mast cell leukemia. Adults and pediatric. Diagnostic, treatment, and research. Bone marrow biopsies. Also adult idiopathic anaphylaxis.
Massachusetts
Center of Excellence for Mastocytosis (and Mast Cell Activation Disorders) at Brigham and Women’s Hospital and Dana Farber Cancer Institute, Brigham and Women’s Hospital
850 Boylston St. Suite 450
Chestnut Hill, MA 02467
Director: Mariana Castells, MD, PhD
Email: mcastells@partners.org
Phone: 617-732-9850 Fax: 617-731-2748
Contact: Norton J. Greenberger, MD, GI
Email: ngreenberger@partners.org
Phone: 617-732-6389 Fax: 617-264-5277
Contact: Richard Horan, MD
Email: rhoran@partners.org
Phone: 617-732-9850 Fax: 617-731-2748
Contact: Daniel DeAngelo, MD, PhD
Email: daniel_deangelo@dfci.harvard.edu
Phone: 617-632-6028
Address: DFCI, 450 Brookline Ave., Dana D1B30
Boston, MA 02215
Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, treatment, and research. Can arrange bone marrow biopsies.
Tufts University School of Medicine
136 Harrison Avenue
Boston, MA 02111
Contact: Theoharis Theoharides, MD, PhD
Professor of Pharm. and Internal Medicine
Email: Theoharis.theoharides@Tufts.edu
Phone: 617-636-6866 Fax: 617-636-2456
Does not see patients in clinic.
Michigan
Myeloproliferative Neoplasms and Systemic Mastocytosis Clinic, University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109
Phone (new patient coordinator): 734-232-2071
Phone (clinic): 734-647-8901 Fax: 734-232-1328
Specialization: Biopsy-proven only – systemic mastocytosis (indolent, smoldering, aggressive SM), SM-AHNMD, and mast cell leukemia. Will perform disgnostic marrows for patients with elevated tryptase or biopsy-proven cutaneous disease. Adults. Diagnostic, treatment, and research.
Minnesota
Mayo Clinic Center of Excellence for Mast Cell and Eosinophil Disorders
Mayo Clinic- Allergy Department
W15-B Mayo Clinic
200 SW 1st St.
Rochester, MN 55905
Co-Director: Joseph Butterfield, MD
Email: butterfield.joseph@mayo.edu
Co-Director: Catherine Weiler, MD
Email: weiler.catherine@mayo.edu
Phone: 507-284-9077 Fax: 507-284-0902
Mayo Clinic – Hematology Department
Contact: Ayalew Tefferi, MD and Animesh Pardanani M.B.B.S., PhD
Phone: (507) 284-5363
Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, bone marrow biopsy, treatment, and research.
University of Minnesota, Program for Mast Cell Diseases
Website: http://mastcell.umn.edu
Contact: Lawrence B. Afrin, MD
(program director; sees adult mast cell disease patients)
Email: afrinl@umn.edu
Contact: Celalettin Ustun, MD
(sees adult advanced / aggressive mastocytosis patients)
Email: custun@umn.edu
University of Minnesota
Division of Hematology, Oncology & Transplantation
420 Delaware St. SE, MMC 480
Minneapolis, MN 55455
Phone: 612-624-0123 Fax: 612-625-6919
Specialization: All mast cell-related diseases. Adult and pediatric patients. Diagnostic and treatment services and basic and clinical research.
Ohio
University of Cincinnati and Bernstein Allergy Group and Research Center
8444 Winton Rd.
Cincinnati, OH 45231
Contact: Dr. Jonathan Bernstein, MD
Email: bernstja@ucmail.uc.edu
Phone: 513-931-0775 Fax: 513-981-0779
Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, treatment, and research. Can arrange bone marrow biopsies. Private family practice.
Texas
MD Anderson Cancer Center
1515 Holcombe Blvd, Unit 428
Houston, TX 77030
Contact: Srdan Verstovsek, MD, PhD
Associate Professor, Leukemia Department
Email: sverstov@mdanderson.org
Phone: 713-792-7305 Fax: 713-794-4297
Specialization: Systemic mastocytosis (SM) only, aggressive SM and mast cell leukemia. Adults. Diagnostic, treatment, and research.
Utah
University of Utah School of Medicine, Department of Internal Medicine, Hematology Division
30 N 1900 E, Room 5C402
Salt Lake City, UT 84132
Contact: Michael Deininger, MD, PhD
Phone: 801-585-3229
Email: michael.deininger@hsc.utah.edu
Specialization: Bone marrow biopsy confirmed mastocytosis, aggressive disease and mast cell leukemia.
Virginia
Virginia Commonwealth University
P.O. Box 980263
1250 East Marshall St.
Richmond, VA 23298
Contact: Dr. LarrySchwartz, MD, PhD
Internal Medicine: Rheumatology, Allergy, and Immunology
Email: lbschwar@vcu.edu
Phone: 804-828-9685 Fax: 804-828-0283
Specialization: All mast cell related diseases including MCAS / MCAD. Adults and pediatric. Diagnostic, treatment, and research. Can arrange bone marrow biopsies.
Europe (Active Centers)
Austria
Medical University of Vienna
Brazil
University of Sao Paulo, Sao Paulo
Denmark
Odense University Hospital
France
Association Française pour les Initiatives de Recherches sur le
Mastocyte et lesMastocytoses (AFIRMM)
Germany
University of Berlin
University of Cologne
Technical University Munich
Ludwig-Maximilians-University Munich
Greece
University Hospital of Athens – Attikon
Italy
University of Naples
Israel
Technion- Israel Institute of Technology, Haifa
The Netherlands
University Hospital Groningen
Poland
University of Gdansk
Portugal
University of Porto
Spain
Centro de Estudios de Mastocitosis de Castilla a Mancha (CLMAst)
Sweden
Karolinska University Hospital, Stockholm
Switzerland
Kantonsspital Aarau, Aarau
Turkey
University of Istanbul
United Kingdom
Guy’s and St. Thoms’ Trust, London
Note: For additional current information on specialities and contact with each European center visit: www.ecnm.net .
