Volunteer Job Postings

Volunteers Needed!

The Mastocytosis Society (TMS) IS Volunteers! If you would like to volunteer for TMS, first please look over the many opportunities which are currently available and see if any of them match the talents you have to share. Then, please go to https://tmsforacure.org/community/volunteer/ and fill out the Volunteer application and submit it to TMS – Please SPECIFY which job(s) you are interested in and how much time you could donate. We look forward to reviewing it! Even if you do not see a volunteer opportunity that interests you below, do not hesitate to submit an application and specify your particular job interest – We can always use help in other areas and we’ll set up a call to chat about the possibilities!  Thank you very much for volunteering! Come make a difference 🙂



TMS Assistant Treasurer:

Typical Tasks:

  • Assist with the financial matters of TMS to include general ledger account and department coding of credit card purchases and expense reports
  • Assist in the budgeting process
  • Assist in attaining certificates of insurance from our insurance agent
  • Lead special projects that may involve communication/email skills, Word, Excel, Google Sheets or other software skills
  • Be willing to fill in as Interim Treasurer in case of illness or leave of absence of the Treasurer

Helpful Experience:

Accounting, bookkeeping, general ledger, general office, basic computer software.


Volunteer Nurses (RN):

Nurse volunteers are VERY needed to help monitor the TMS  Inspire forum, to respond to emails from patients, caregivers, family members, physicians and other health care professionals. We will train you in promoting the mission of TMS. You can offer to volunteer any number of hours that you are able to. Any time you can give is much appreciated. We know there are a lot of nurses out there, and we hope to hear from many of you!

Nurses must have graduated from an accredited diploma program in nursing, associate degree program in nursing, bachelor degree program in nursing or higher, hold a current license to practice nursing in their home state, and we strongly advise that nurses carry nurse malpractice insurance that covers them as volunteers (i.e. Nursing Service Organization malpractice insurance). TMS has a general policy to cover us as a non-profit institution, which covers all volunteers, and we will be adding specific coverage for liability for nurses. If they have any additional initials or certifications after their name, such as RNC, copies of these certifications must be submitted to be kept on file to the Patient Care Coordination Chair along with a copy of their current license and insurance. Please fill out a volunteer form, specifying this job interest, at  https://tmsforacure.org/community/volunteer/

[If you’re interested, we also love RNs to help exhibit at medical conferences.]


Graphic Design:

We are looking for graphic designers to work in collaboration with Susi Jennings in Research, Courtney Rabb in Fundraising, Jan Hempstead in Patient Care, and Nicole Fox in Education and Gail Barbera for Medical Conferences to make infographics for Website, FB, and conference displays, be able to update/design business cards, brochures, and other projects. Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying your job interest.


Grant Writers:

Always needed! Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying your job interest.


Medical Conferences:

Conference Standby Exhibitors:

TMS sends exhibits to 4-5 big medical conferences each year, usually September – April, and some smaller “tabletop” conferences in the summer. We currently have a couple of “point people” who exhibit at every conference but would love to find a few more people who would stay on a list available to be activated if one of our regular exhibitors needs to drop out for some reason, or if we need extra exhibitors at the larger conferences.  These standby heroes would ideally live in the same state/region as the conference to cut down on last minute travel time, so we are looking for volunteers all across the country – and TMS would pick up all of your travel/hotel/food costs. Medical conferences involve taking direction from our Medical Conference Project Manager Gail Barbera, working with 1-3 other volunteers helping with the exhibit, air travel, standing for long periods while greeting physicians and explaining our materials, 3-5 night stay at hotels with the usual cleaning odors/restaurant foods/etc, ability to work in a large open convention center with the usual carpet off-gassing odors/perfumes/lighting/etc., unpacking/setting up, and dismantling/packing the display with help of the other volunteers there. You do not need to be an expert in mast cell diseases to do this, just be familiar with the TMS printed materials and be able to show visiting health care professionals where to find information (we will train you). Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying this job interest

 

Medical Conference Project Manager:

Do you enjoy project planning for events? TMS is looking for someone to remotely arrange/manage our exhibits at 4 or 5 medical conferences each year, currently the American Academy of Pediatrics (typically, Sept. or Oct.), American Society of Hematology (December), Pediatric Dermatology (October), and the American Academy of Allergy, Asthma and Immunology (March). There are also some smaller tabletop displays to schedule/arrange throughout the year. This position would be done completely from your home, online, during hours you choose. This volunteer should have a strong project management background or excellent organizational skills with fine attention to details and deadlines. When prompted, you would access an online portal a few months before each conference and fill out their list of various forms and registrations. This volunteer will be responsible for assisting with giving conference information to the exhibit volunteers and anticipating materials supply needs. The actual physical packing and shipping for the conferences will be done by our TMS Materials Manager from our storage facility but you would be arranging the shipment dates/details online with her. We anticipate closely mentoring this volunteer through the first year or until comfortable with the work. A strong background in project management or experience in organizing time-critical projects is essential.

Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying this job interest


IT Committee:

Website Editors:

We have a WordPress Website. Do you know how to manipulate/program/code WordPress? We’d like to make some changes to the organization of our pages, troubleshot problems, etc….

Or …have you just worked a bit on WordPress before? We also need people who know how to just add/edit/update items on already established pages. (Some folks know how to completely set these websites up and some folks just know how to add/edit posts. We need both!)

More on the IT Committee:

Looking for experienced computer, A/V and webinar individuals to form a Technology Committee to assist us in planning technology needs for our big TMS patient/caregiver conference (odd numbered years) and for our mini-conferences/regional support group meetings (even numbered years).  These individuals should be able to integrate audio/visual and internet items, help with streaming, recording, etc.  We are interested in an investigation of, or knowledge of, tools to use for patients to be able to remotely interact with support group meetings, webcasting speakers, etc.  Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying your job interest and IT experience.

 


Research Committee Writers and Data Reviewers:

The Research Committee is looking for PhD prepared or Master’s degree individuals with extensive experience to help write, edit, and otherwise review articles for peer reviewed journal articles and book chapters. This does involve a sizeable time commitment, a few hours weekly minimum on a consistent basis.  Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/ specifying this job interest and email your resume/CV to Susan.jennings@tmsforacure.org.


Young Adult Facebook Support Page Admin

With college classes starting back up there is heightened interest in setting up a facebook peer-to-peer support group page for Young Adults, those 18-30 years old. These young people are trying to navigate life with their disease while becoming more independent, leaving home, going to classes, socializing, dating, coping with increased personal stresses, late hours, chaotic living arrangements, new foods, drinking, etc. The page would function as a peer support page, encouraging conversations between members, with professional(s) keeping an eye on things, offering support and information when necessary. If you have experience with this age group, have been a counselor or social worker, etc and would like to help monitor and admin this Facebook group please and fill out a volunteer form specifying this. You will have the full support of TMS BOD and resources behind you! This is a great need, please help us help our Young Adult mast cell disease community!  Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/ specifying this job interest.


Support Group Leaders

We have several states still without support groups because we need Leaders. Leaders will be mentored and supported by the Support Committee, will be given Leader Guidelines to follow, will be responsible for finding a safe accessible space to hold meetings once or twice a year that is as scent/mold/allergen free as possible, be able to communicate with members, etc.  See the full description and states needing Leaders at https://tmsforacure.org/resources/support-groups-2/

Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/ specifying this job interest.


Fundraising Committee:

We need folks who could assist our Fundraising Chair, Courtney Rabb, dream up some fundraising ideas, followup on projects, help Support Groups get their fundraising activities off the ground, or write thank you notes, etc.  TMS runs on fundraising! Please fill out a volunteer form, specifying your job interest, at  https://tmsforacure.org/community/volunteer/


Advocacy Committee:

TMS is looking for passionate individuals to assist our Advocacy Chair, Barbara Ruby, with advocacy projects working with NORD, Global Genes, the FDA, Pharmaceutical Companies, government officials, etc – there are so many projects we would love to engage in and areas that would benefit from advocacy but we need a few self-starters to get involved and make a difference! Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying your job interest


Pediatric Committee:

We are looking for folks with medical, educational, or social work pediatric experience to expand our Pediatric Committee. This would involve suggesting topics, sourcing/submitting articles for the Peds page of the TMS website, offering assistance/support to members with questions via email and/or FB, knowledge of educational/travel/social accommodations, inspiring initiatives to bring this community together, etc. Please fill out the volunteer form on the TMS website https://tmsforacure.org/community/volunteer/  specifying your job interest