Helpful hints for living with the symptoms of mast cell disorders shared by patients living with these disorders- skin lesions & itching

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Skin Lesions & Itching:

I find that my oral cromolyn sodium applied to the skin can help with severe itching.

For flushing I use cool wash clothes and cool showers and baths.

Keeping skin hydrated helps prevent the real acute itching. I use olive oil or mineral oil.

Oatmeal baths help when my itching gets severe.

Aspirin therapy has helped with my flushing the most. First my doctor ordered a 24 hour urine collection for prostaglandin D2 and 11 beta prostaglandin F2 alpha, which were both elevated. Because aspirin can cause anaphylaxis in up to one third of patients with mast cell disorders, aspirin therapy must be started in a doctor’s office or hospital setting, and you have to stay for hours after the dose each time to make sure that you are not reacting. Still, it was worth it, because my flushing has been significantly reduced.

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