Helpful hints for living with the symptoms of mast cell disorders shared by patients living with these disorders – Diarrhea

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I never leave home without anti-diarrheal meds, wipes, a bag with extra underwear, a few adult diapers, and a change of clothes, and trash bags for disposal.

Get over yourself and try adult diapers for the horrific days if you have to leave the house to travel to a doctor’s appointment or for any other mandatory reason. They are actually very comfortable, and spare you from a very embarrassing accident.

I use Balmex or Butt Paste to soothe tissue irritated by diarrhea. Both work great.

My doctor put me on an old cholesterol medicine, colestipol, to help with diarrhea, and it has made a world of difference. Also, he recommended bismuth containing preparations to help with diarrhea, and that has also helped with the bloating and gas.

Using the Specific Carbohydrate diet has helped with all of my gi symptoms.

For a really bad flare with diarrhea and nausea, I revert to eating just baby rice cereal (brown rice is better for me, but white rice is also an option) and drinking decaf tea and pedialyte. I do this until I see real signs of recovery in terms of pain, number of diarrheic stools and amount of nausea.

My safety strategy is to keep pedialyte or Gatorade in the house at all times.

I keep my emergency meds and a blanket in a tote by the toilet (so they are available during prolonged bouts of diarrhea and vomiting).

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