Patient Voice Forums - Monthly
We are looking forward to the second series of our monthly Patient Voice Forums as part of our 2021 Rare Disease Day Initiative.
Wednesday, June 23, 2021 at 7:00 pm ET
Living Well with Mast Cell Disease: Considerations for emotional support, self-care, and a fulfilling quality of life
Speaker: Amy Ruzicka Ph.D.
Thursday July 28, 2021 at 7:00 pm ET
Caregivers on the Edge: How to help a mast cell patient when nothing helps, and how to help yourself when you feel like you can’t.
Speakers: Amy Ruzicka Ph.D.
To view our past webinars please visit here: https://tmsforacure.org/
January 6, 2021 at 7:00 pm ET
Navigating Nutrition with Mast Cell Disease
Speaker: Bonnie Nasar, RDN
February 24, 2021 at 7:00 pm ET
Speaker: Stephanie Carroll, RN
March 31, 2021 at 7:00 pm ET
Social Security Disability
Speakers: Michael Liner and Jennifer Morgan, Elevate Disability
April 21, 2021 at 7:00 pm ET
Dysautonomia & Mast Cell Disease
Speakers: Lauren Stiles, JD, President & Co-Founder of Dysautonomia International
Thursday May 27, 2021 at 7:00 pm ET
Hereditary Alpha Tryptasemia (HaT) Patient Q&A
Speakers: Jonathan Lyons, MD and Sarah Glover, DO
Due to NIH restrictions and patient privacy, this special PVF event was not recorded. *Check back in June for a recorded HaT Patient Q&A with Dr. Sarah Glover.
Support Groups - Monthly
Our support groups for patients and caregivers meet routinely. Please visit our support group page to register for a meeting. We look forward to connecting with you!
Concert at Home: Living Room Sessions - Quarterly
Join us for a concert at home, from our living room to yours, bringing together patients, caregivers, & supporters of our rare community.
We know we are apart from many of our loved ones, and we wanted to do something special together with our members to celebrate the hope and healing around music. Join The Mast Cell Disease Society for our FREE new quarterly series bringing together patients, caregivers, and supporters of our rare community for a night of connection and healing through music.
Wednesday, December 30, 2020
Ben Rabb, Folk Singer/Songwriter
Concert begins at 5:00pm Pacific/8:00pm Eastern
TMS's 24th National Patient & Caregiver Conference, presenting sponsor Blueprint Medicines - October 13-20, 2021
Join us in fall 2021 for our national virtual 24th TMS Patient & Caregiver Conference.
The 24th national TMS Patient/Caregiver Conference will consist of lay-person-focused medical presentations, panel discussions, workshops and support group sessions, with time for questions, and will incorporate breaks to allow for resting periods, and free time to allow for casual socializing through our virtual platform.
This conference will provide a uniquely supportive environment in which patients, caregivers and families learn to self-advocate, and will offer exposure to research and clinical trial information to which they normally would not have access. Patients, caregivers, physicians, young or established investigators, and biopharma can interact outside of the medical environment to promote more positive relationships in a casual atmosphere.
The deadline for registration is October 1, 2021.