Latest Mastocytosis Society Events


Patient Voice Forum for Mast Cell Activation Syndrome (MCAS)
February 11, 2020

We are thrilled to announce the launch of a new series of Patient Voice Forums. TMS wants to ensure our physicians are aware of the needs and concerns of our community. As such, beginning in February we will have a monthly online moderated forum on the various types of Mast Cell Diseases with TMS Advisory Board Physicians. 
We hope you will join us for the first Patient Voice Forum for Mast Cell Activation Syndrome (MCAS) on Tuesday, February 11, 2020 at 8:00 pm (Eastern Time). 
We are grateful to our physician panel which now includes: Dr. Matthew Hamilton, Dr. Marianna Castells, Dr. Marla Barkoff, Dr. Charity Fox, and Dr. Theo Theoharides.
To join the webinar please follow the registration
instructions below:
When: Feb 11, 2020 08:00 PM Eastern Time (US and Canada)
Topic: TMS Patient Voice Webinar (MCAS 2/2020)
Register in advance for this webinar:
After registering, you will receive a confirmation email containing information about joining the webinar, from Gail Barbera, TMS Secretary. The email link you receive is unique to you, so please do not share it.
*Please note in order to submit questions in future webinars you must be a member- please join! Membership is free by visiting here:
Thank you so much for your participation in what we know will be a very meaningful event for our entire community.
The full schedule for the rest of the Patient Voice series will be published soon!

MAY 1 – 3, 2019

Join us May 1-3, 2019 in Northern California for the 2019 Patient Conference.

The 23rd national TMS Patient/Caregiver Conference will consist of lay-person-focused medical presentations, panel discussions, workshops and support group sessions, with time for questions, and will incorporate breaks to allow for resting periods, and free time to allow for casual socializing.

This conference will provide a uniquely supportive environment in which patients, caregivers and families learn to self-advocate, and will offer exposure to research and clinical trial information to which they normally would not have access. Patients, caregivers, physicians, young or established investigators, and biopharma can interact outside of the medical environment to promote more positive relationships in a casual atmosphere.

Registration is required and is now open.  Rates increase after March 31, 2019. The deadline for registration is April 21, 2019.

Learn More

2018 TMS Member Meeting

Please Join The Mastocytosis Society’s Board of Directors for our 2018 TMS Member Meeting:

Tuesday, December 18, 2019, 8:00 pm- 9:00 pm (ET)Each Committee Chair will give a brief report about their year’s activities.

This meeting will be conducted via GoToMeeting and a summary of the meeting will be posted on this website afterward.
Information with the link to access the meeting is being emailed to all registered TMS members.
Members may sign in on their computer at no cost, or call in by phone and local rates may apply.
Members may send in questions by December 16 to and more questions will be taken during the meeting as time allows. We are also happy to answer further questions
on the TMS Facebook page.

We look forward to updating you on all that has been accomplished in 2018!

Inspire Webinar

There was an Inspire “How-To” webinar offered for all TMS FB members in October 2018. The Inspire Team answered the questions and concerns that you submitted to us and some we copied from the FB page posts. This webinar has been saved to be viewed after the live showing – you can view a recording of the webinar here.

Please don’t hesitate to reach out to us with any comments or questions.


Judy and the rest of us here at Team Inspire

Misbehaving Mast Cells in POTS and Other Forms of Dysautonomia

Join The Mastocytosis Society and Dysautonomia International for a review of the relationship between autonomic dysfunction and misbehaving mast cells. Guest speakers, Dr. Andrew White, an immunologist at the Scripps Clinic in La Jolla, California and Dr. Jonathan Bernstein, an immunologist at University of Cincinnati, reviews the current approaches to diagnosing and treating mast cells disorders, how MCAS is distinguished from other mast cell disorders and theories on what may be causing mast cell symptoms in some people with POTS and other forms of dysautonomia. The doctors answer your questions during the Q&A at the end of the webinar.

Watch Here

Support Group Meetings

Click Here to see a list of upcoming Support Group meeting dates.  See you there!

TMS 2018 Walk-a-Thon

Each year, thousands of people participate in our annual walk-a-thon to raise money and awareness for Mast Cell Disorders. This year we invite you to create your own “Fundraiser Page” and share it with friends and family who will contribute to your effort of raising money for TMS.

Learn More

2018-2019 Conferences

The Mastocytosis Society, Inc. will hold its next large scientific and support conference for patients, families and health care professionals in 2019, in Northern California.
In 2018, we will be hosting six regional one-day conferences with a presentation by a mast cell specialist and a support group session. Stay tuned for updates!