Latest Mastocytosis Society Events
We are looking forward to the second webinar in our 2020 Rare Disease Day Initiative with:
Patient Voice Forum for
Mastocytosis (Systemic and Cutaneous)
Wednesday, March 25, 2020
8:00 pm (Eastern Time)
Patient Voice Forum for Mast Cell Activation Syndrome (MCAS)
February 11, 2020
THE MASTOCYTOSIS SOCIETY INC. CONFERENCE
MAY 1 – 3, 2019
Join us May 1-3, 2019 in Northern California for the 2019 Patient Conference.
The 23rd national TMS Patient/Caregiver Conference will consist of lay-person-focused medical presentations, panel discussions, workshops and support group sessions, with time for questions, and will incorporate breaks to allow for resting periods, and free time to allow for casual socializing.
This conference will provide a uniquely supportive environment in which patients, caregivers and families learn to self-advocate, and will offer exposure to research and clinical trial information to which they normally would not have access. Patients, caregivers, physicians, young or established investigators, and biopharma can interact outside of the medical environment to promote more positive relationships in a casual atmosphere.
Registration is required and is now open. Rates increase after March 31, 2019. The deadline for registration is April 21, 2019.
2018 TMS Member Meeting
Please Join The Mastocytosis Society’s Board of Directors for our 2018 TMS Member Meeting:
Tuesday, December 18, 2019, 8:00 pm- 9:00 pm (ET)Each Committee Chair will give a brief report about their year’s activities.
This meeting will be conducted via GoToMeeting and a summary of the meeting will be posted on this website afterward.
Information with the link to access the meeting is being emailed to all registered TMS members.
Members may sign in on their computer at no cost, or call in by phone and local rates may apply.
Members may send in questions by December 16 to firstname.lastname@example.org and more questions will be taken during the meeting as time allows. We are also happy to answer further questions
on the TMS Facebook page.
We look forward to updating you on all that has been accomplished in 2018!
There was an Inspire “How-To” webinar offered for all TMS FB members in October 2018. The Inspire Team answered the questions and concerns that you submitted to us and some we copied from the FB page posts. This webinar has been saved to be viewed after the live showing – you can view a recording of the webinar here.
Please don’t hesitate to reach out to us with any comments or questions.
Judy and the rest of us here at Team Inspire
Misbehaving Mast Cells in POTS and Other Forms of Dysautonomia
Join The Mastocytosis Society and Dysautonomia International for a review of the relationship between autonomic dysfunction and misbehaving mast cells. Guest speakers, Dr. Andrew White, an immunologist at the Scripps Clinic in La Jolla, California and Dr. Jonathan Bernstein, an immunologist at University of Cincinnati, reviews the current approaches to diagnosing and treating mast cells disorders, how MCAS is distinguished from other mast cell disorders and theories on what may be causing mast cell symptoms in some people with POTS and other forms of dysautonomia. The doctors answer your questions during the Q&A at the end of the webinar.
Support Group Meetings
Click Here to see a list of upcoming Support Group meeting dates. See you there!
TMS 2018 Walk-a-Thon
Each year, thousands of people participate in our annual walk-a-thon to raise money and awareness for Mast Cell Disorders. This year we invite you to create your own “Fundraiser Page” and share it with friends and family who will contribute to your effort of raising money for TMS.