Citations for TMS Handouts

Often in brochures and handouts we are trying to cram as much information as possible into a small amount of space. As a result, we have moved the citations from these documents to this page and made them available by QR code on the publication.

Patient’s Guide to Systemic Mastocytosis

Acknowledgements: TMS would like to thank the following members of our Medical Advisory Board who advised on this project: Dr. Mariana Castells, Dr. Cem Akin, and Dr. Cela Ustun.

REFERENCES

1.            Jennings SV, Finnerty CC, Hobart JS, et al. Mast Cell Diseases in Practice and Research: Issues and Perspectives Raised by Patients and Their Recommendations to the Scientific Community and Beyond. J Allergy Clin Immunol Pract. 2022;10(8):2039-2051.

2.            Mesa RA, Sullivan EM, Dubinski D, et al. Perceptions of patient disease burden and management approaches in systemic mastocytosis: Results of the TouchStone Healthcare Provider Survey. Cancer. 2022;128(20):3700-3708.

3.            Valent P, Sotlar K, Horny HP, Arock M, Akin C. World Health Organization Classification and Diagnosis of Mastocytosis: Update 2023 and Future Perspectives. Immunol Allergy Clin North Am. 2023;43(4):627-649.

4.            Gotlib J, Gerds AT, Abdelmessieh P, et al. NCCN Guidelines(R) Insights: Systemic Mastocytosis, Version 3.2024. J Natl Compr Canc Netw. 2024;22(2D).

5.            Mesa RA, Sullivan EM, Dubinski D, et al. Patient-reported outcomes among patients with systemic mastocytosis in routine clinical practice: Results of the TouchStone SM Patient Survey. Cancer. 2022;128(20):3691-3699.

6.            Schmidt TJ, Sellin J, Molderings GJ, Conrad R, Mucke M. Health-related quality of life and health literacy in patients with systemic mastocytosis and mast cell activation syndrome. Orphanet J Rare Dis. 2022;17(1):295.

7.            Gangireddy M, Ciofoaia G. Systemic Mastocytosis. Treasure Island (FL): StatPearls Publishing; 2023.

8.            Valent P, Hartmann K, Schwaab J, et al. Personalized Management Strategies in Mast Cell Disorders: ECNM-AIM User’s Guide for Daily Clinical Practice. J Allergy Clin Immunol Pract. 2022;10(8):1999-2012 e1996.

9.            Valent P, Akin C, Sperr WR, et al. New Insights into the Pathogenesis of Mastocytosis: Emerging Concepts in Diagnosis and Therapy. Annu Rev Pathol. 2023;18:361-386.

10.         Li JY, Ryder CB, Zhang H, et al. Review and Updates on Systemic Mastocytosis and Related Entities. Cancers (Basel). 2023;15(23).

11.         Castells M, Butterfield J. Mast Cell Activation Syndrome and Mastocytosis: Initial Treatment Options and Long-Term Management. J Allergy Clin Immunol Pract. 2019;7(4):1097-1106.

12.         Gotlib J, Castells M, Elberink HO, et al. Avapritinib versus Placebo in Indolent Systemic Mastocytosis. NEJM Evid. 2023;2(6):EVIDoa2200339.