FDA Patient Listening Session on Mastocytosis

Nov 02, 2021

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Director of Patient Programs – Ivy Lopez

Jul 19, 2021

Welcome Ivy Lopez, Director of Patient Programs! It is with great excitement we announce that Ivy Lopez will join TMS in August as the Director of Patient Programs. In this new role, Ivy will be responsible for leading the overall programmatic delivery of education and learning for our community of patients, caregivers, and health care providers. […]

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Executive Director – Lauren Denton

Sep 12, 2020

It is with great excitement, that we announce the arrival of The Mast Cell Disease Society’s first-ever Executive Director – Lauren Denton. After completing a rigorous search process over the last three months we are thrilled for Lauren to begin her work with us on Monday, September 14th. Lauren joins with a decade of experience […]

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TMS 2020 Mast Cell Disease COVID-19 Survey

Jun 17, 2020

The Mast Cell Disease Society, Inc. 2020 Patient Survey to Assess Impact of COVID-19 in Patients with Mast Cell Disease   This survey is closed. You are invited to participate in a survey being conducted by Middle Tennessee State University (MTSU) researchers, in collaboration with The Mastocytosis Society, Inc. (TMS), designed to assess the impact of COVID-19 […]

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Mast Cell Disorder Challenges Meetings and American Initiative in Mast Cell Diseases (AIM)

May 21, 2019

UPDATE-May 2019: Partnered with our TMS Patient/Caregiver Conference (May 1-3, 2019), TMS and the American Initiative in Mast Cell Diseases (AIM) Steering Committee worked together to host the Inaugural AIM Physician/Investigator Conference (May 4-5, 2019).  Both conferences were held in the San Francisco Bay Area. The intention of AIM is to develop a pan-American mast […]

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Epi Pen Shortage

Sep 14, 2018

There is an ongoing shortage of epinephrine auto-injectors causing a crisis for mast cell disease patients attempting to fill their prescriptions. Our F.A.R.E. (Food Allergy Research & Education) colleagues have recommended the following steps: Visit http://healthmart.com/ to find an independent pharmacy. Ask your doctor for another brand and get trained on how to use it. […]

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TMS Mast Cell Activation Syndrome Initiatives Update

Jun 30, 2018

Good day, The Board and committee volunteers at TMS have been increasingly aware of frustrations arising in several areas, specifically with difficulty accessing care and for both recognition and validation of Mast Cell Activation Syndrome (MCAS). Please know that we share your concerns and these issues are foremost in our minds every day. We are […]

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INSPIRE Forum & Online Communities

Jun 18, 2018

We are excited to announce that The Mastocytosis Society, Inc (TMS) launched an online community called Mast Cell Diseases Unite on Inspire. MORE INFO…

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Sharing a Patient Perspective at Deciphera Pharmaceuticals

Apr 17, 2018

On February 28, 2018, in honor of Rare Disease Day, The Mastocytosis Society provided the employees at Deciphera Pharmaceuticals with the opportunity to hear first-hand from a patient perspective what it’s like to live with systemic mastocytosis. Janice Chiappione, a local patient living with systemic mastocytosis, visited the company and spoke to the team about […]

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The Mastocytosis Society, Inc. Announces Three Research Grants

Feb 14, 2018

The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While initially, we thought we would only be able to support one research study, thanks to […]

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