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Director of Patient Programs – Ivy Lopez
Jul 19, 2021
Welcome Ivy Lopez, Director of Patient Programs! It is with great excitement we announce that Ivy Lopez will join TMS in August as the Director of Patient Programs. In this new role, Ivy will be responsible for leading the overall programmatic delivery of education and learning for our community of patients, caregivers, and health care providers. […]
Executive Director – Lauren Denton
Sep 12, 2020
It is with great excitement, that we announce the arrival of The Mast Cell Disease Society’s first-ever Executive Director – Lauren Denton. After completing a rigorous search process over the last three months we are thrilled for Lauren to begin her work with us on Monday, September 14th. Lauren joins with a decade of experience […]
TMS 2020 Mast Cell Disease COVID-19 Survey
Jun 17, 2020
The Mastocytosis Society, Inc. 2020 Patient Survey to Assess Impact of COVID-19 in Patients with Mast Cell Disease This survey will remain open for the foreseeable future You are invited to participate in a survey being conducted by Middle Tennessee State University (MTSU) researchers, in collaboration with The Mastocytosis Society, Inc. (TMS), designed to assess the […]
Mast Cell Disorder Challenges Meetings and American Initiative in Mast Cell Diseases (AIM)
May 21, 2019
UPDATE-May 2019: Partnered with our TMS Patient/Caregiver Conference (May 1-3, 2019), TMS and the American Initiative in Mast Cell Diseases (AIM) Steering Committee worked together to host the Inaugural AIM Physician/Investigator Conference (May 4-5, 2019). Both conferences were held in the San Francisco Bay Area. The intention of AIM is to develop a pan-American mast […]
Epi Pen Shortage
Sep 14, 2018
There is an ongoing shortage of epinephrine auto-injectors causing a crisis for mast cell disease patients attempting to fill their prescriptions. Our F.A.R.E. (Food Allergy Research & Education) colleagues have recommended the following steps: Visit http://healthmart.com/ to find an independent pharmacy. Ask your doctor for another brand and get trained on how to use it. […]
TMS Mast Cell Activation Syndrome Initiatives Update
Jun 30, 2018
Good day, The Board and committee volunteers at TMS have been increasingly aware of frustrations arising in several areas, specifically with difficulty accessing care and for both recognition and validation of Mast Cell Activation Syndrome (MCAS). Please know that we share your concerns and these issues are foremost in our minds every day. We are […]
INSPIRE Forum & Online Communities
Jun 18, 2018
We are excited to announce that The Mastocytosis Society, Inc (TMS) launched an online community called Mast Cell Diseases Unite on Inspire. MORE INFO…
Sharing a Patient Perspective at Deciphera Pharmaceuticals
Apr 17, 2018
On February 28, 2018, in honor of Rare Disease Day, The Mastocytosis Society provided the employees at Deciphera Pharmaceuticals with the opportunity to hear first-hand from a patient perspective what it’s like to live with systemic mastocytosis. Janice Chiappione, a local patient living with systemic mastocytosis, visited the company and spoke to the team about […]The Mastocytosis Society, Inc. Announces Three Research Grants
Feb 14, 2018
The Mastocytosis Society, Inc. Announces Three Research Grants (Sterling, MA, February 14, 2018) The Mastocytosis Society, Inc. (TMS) has awarded three research grants totaling $170,000 to support research in Pediatric Mastocytosis, including Related Disorders of Pediatric Mast Cell Activation. “While initially, we thought we would only be able to support one research study, thanks to […]