Jan 10, 2022
January 2022 I’m Sandra, and my story began 20 years ago. My first drive to the ER with my daughter was one of my most scariest moments. She was covered in hives and went into anaphylaxis. What was happening to my daughter? Did she eat something she was allergic to? Did she use a new […]
Oct 06, 2021
Hi, my name is Dawnique. I live in New Mexico. I have Mast Cell Activation Syndrome. It is thought that I’ve had it for years but I didn’t become very sick with it until December 2020. I was diagnosed with MCAS January 2021. My worst symptoms are: Anaphylaxis, dermatographia, swelling, hives, rashes, diarrhea, gi pain, […]
Oct 01, 2021
In 2011 I was diagnosed with a Carcinoid Cancer Tumour in my appendix they call it Neuroendocrine Cancer now. In 2013 I developed symptoms of asthma, flushing, tachycardia and severe abdominal cramping, throat swelling these symptoms were very similar to Carcinoid Syndrome but once it was ruled out a doctor suspected Mastocytosis I then had […]
Feb 07, 2019
A woman stood amongst the rubble, solemnly watching as the emergency crew prepared her husband for transport. An officer contorted his face with a hardened expression, delivering the unfortunate news. It was assumed he fell asleep behind the wheel. The predicted outcome was grim. Despite numerous miscarriages, the young newlyweds were unknowingly parents the day […]
Jan 06, 2019
Joseph has been his parents hero from the very beginning. He was diagnosed with Diffuse Cutaneous Mastocytosis by 6 months old at the University of Minnesota Masonic Hospital. Now at the age of 6, he is at risk for extreme anaphylaxis at any time. We are also being challenged with GI and fatigue problems. JoJo […]
Jan 01, 2018
Can You Find Love and Friendship Online? Articles About Our Friend Olive… In the late 1990s, a diagnosis of mastocytosis left most with fear of the true unknown. My family, like many others, didn’t have a personal computer in our home. Computers were for work. I had been unable to work for some time, but […]
Feb 01, 2017
Article By Pam Hodge I have cried a million tears and asked why a million times, never to get the answer. At times I have just held on because that is all I could do. I thought at times our family would crumble because of lack of support. I have gone through the stages of […]
Jan 26, 2017
Dr. Catherine Weiler’s career has been dedicated to the treatment and study of allergy, immunology and mast cell disorders. She has been in the Division of Allergy at the Mayo Clinic in Rochester, MN since 1998, is currently the Co-Director of Mayo Program for Mast Cell and Eosinophilic Disorders and will be the incoming Chair […]
Jan 26, 2017
As a mother, nothing can prepare you for moments of darkness. When you have a baby, you pray for all good things… all good moments. You expect light. One thing our youngest son Wyatt has taught us is that, despite all dark moments, light will always prevail. When Wyatt was born, I immediately knew something […]
Jan 13, 2017
Never in my wildest thoughts did I imagine my current role as care provider to my husband. For years leading up to 2010 our lives were pretty typical. Two daughters in school, a restaurant that we owned and managed and a family filled with love and joy. Leading up to that time, Fabio was extremely […]