Thank you for taking the time to look for Careers at The Mast Cell Disease Society. If you are interested in working with TMS, please submit your cover letter and resume to

Executive Director

We are seeking a dynamic Executive Director (ED) to provide leadership, successfully advance TMS’s mission by leading core fundraising, advocacy, and strategic planning initiatives as developed in coordination with the Board of Directors. The ED has primary responsibility for executing these initiatives by cultivating and expanding donor relations, developing fundraising initiatives, identifying and applying for appropriate grants, increasing awareness of mast cell diseases and visibility of TMS, fostering community development, and achieving operational excellence for TMS initiatives. The ED is responsible for ensuring the day-to-day function of the organization by supervising the team of dedicated employees, and overseeing and optimizing organizational finances, fundraising, and business operations. The ED provides overall leadership and management for short- and long-term strategies designed to create cost effective and ongoing sources of revenue and community engagement.

The successful candidate does not need to have a strong medical or scientific background, as the organization has a dedicated Medical Advisory Board to provide guidance and an active Research Committee charged with directing and supervising the scientific research endeavors of TMS. A basic understanding of science will be helpful to gain fluidity in communication with TMS partners.

The Executive Director reports to the Board.

A successful candidate for the Executive Director position:

  • welcomes the opportunity to work with staff, individuals, and donors to increase fundraising and further the organization’s core mission;
  • is a self-starter and strong leader who is committed to improving the lives of individuals living with mast cell diseases;
  • is compassionate, trustworthy, collaborative, optimistic, and acts with a high degree of integrity in representing the organization; and
  • is sensitive and empathetic to the needs of the many members of the mast cell disease community.


  • Is responsible for a small staff, including assigning duties, overseeing work, and all other administrative duties that accompany managing a team.
  • Serves as the primary representative for organizational activities.
  • Inspires confidence in TMS’s mission and activities.
  • Works closely with the Board of Directors to implement the strategic plan.
  • Reports on the Society’s successes and challenges to the Board of Directors.

Strategic Operations:

  • Responsible for the overall operations of TMS.
  • Manages activities of the organization, including, but not limited to, developing and monitoring annual budget, maintaining records, and overseeing short- and long-term planning with efficiency and transparency.
  • Recommends timelines and requests resources needed to achieve the strategic goals.
  • Ensures annual and long-term financial viability.
  • Meets regularly with Board of Directors and Medical Advisory Board.

Administrative & Management:

  • Ensures ethical best practices in all TMS activities.  
  • Leads current staff with daily oversight while seeking to expand team.
  • Inspires staff to high performance by removing barriers, coaching others to be creative and action-oriented, and proactively anticipates needs to drive success
  • Handles the day-to-day activities including monitoring the website, email account, and phone messages, with follow-up.
  • Has overall responsibility for all general and administrative functions including financial analysis and reporting, budgeting, human resources, risk management, and compliance with federal and state legal regulations.
  • Supports Board of Directors and committees, including agendas, reports, and other written materials for periodic meetings.
  • Actively engages, trains, and energizes volunteers, event committees, partnering organizations, and funders.
  • Provides accounting agency with documentation for transactions; coordinate review of financial reports with treasurer and other board members.
  • Prepares annual tax documents in collaboration with accounting agency and circulates for board review prior to filing deadline. Ensure timely filing of form 990.
  • Maintains records required by granting agencies.

Fundraising & Development:

  • Oversees fundraising activities, including developing and maintaining relationships with donors and corporations, identifying new funding opportunities, and coordinating grant application process. 
  • Creates and executes fundraising strategies to meet annual goal
  • Builds diversified revenue streams including special events, corporate partnerships, foundations, individual/major gifts, and other sources of funding.
  • Maintains donor database.

Relationship Building:

  • Develops and manages strategic partnerships and alliances.
  • Increases engagement with key stakeholders domestically and internationally.
  • Cultivates productive relationships with the media.

Advocacy and Awareness:

  • Serves as TMS spokesperson to increase awareness of Mast Cell Diseases.
  • Builds and maintains relationships with other advocacy groups.
  • Communicates with legislators and sponsors.

Marketing and Communications: 

  • Develops a communication strategy across all platforms including web and social media to further ensure TMS remains a well-respected, primary source of information on mast cell diseases.
  • Creates well written, professional communications for dissemination through social media, email, and other public forums.
  • Monitors social media accounts and create posts, ensuring the website and all social media sites (Facebook, Twitter, YouTube, etc.) are maintained and current.
  • Prepares draft press releases as needed.


Successful candidates must demonstrate leadership, operational, financial, fundraising, and management skills along with a record of working independently.

Educational achievements: Bachelor’s degree (minimum) or Master’s degree (preferred) in: Nonprofit Management, other equivalencies considered.


  • Proven record of successful management and revenue growth:
  • 5 to 10 years’ leadership experience in non-profit management including strategic planning, program development/oversight and team building.
  • 5 years fundraising experience with proven track record of finding new revenue streams, closing major gifts, sponsorships, and successful grant writing improving financial results.


  • Ability to work proactively and without direct supervision.


  • Ability to manage multiple projects with varying priorities and timelines simultaneously.
  • Strong planning, organizational, and follow-up skills including seeing projects through to completion.
  • Maintaining operational excellence.
  • Diligent financial management skills, including budget preparation, analysis, decision-making and reporting graphics prepared for both the board and the community.


  • Excellent oral and written communication, presentation, and interpersonal skills. 
  • The ability to advocate, communicate, and adapt TMS’s strategic messaging for external and internal audiences.
  • Demonstrate professional, positive, and mature interaction with staff and stakeholders.


  • Highly detail-oriented with excellent organizational skills and a critical degree of accuracy regarding project deliverables.


TMS offers excellent benefits and competitive compensation.  

  • Annual salary of $80K – $100K, exact compensation may vary based on skills and experience.
  • Health insurance
  • Generous holiday and Paid Time Off plan

If you believe you meet these requirements and would like to become a part of our dedicated team, we’d like to meet with you to talk about this diverse, highly-visible, hands-on position.

Qualified candidates please e-mail resumes to

We are an equal opportunity employer

Postdoctoral Research Fellow

The Mast Cell Disease Society is seeking highly motivated candidates for a Postdoctoral Fellowship in patient-centered research related to mastocytosis, mast cell activation disorder, and hereditary alpha-tryptasemia. These diseases can have extreme impact on a patient’s daily living, from daily symptoms of mast cell activation to life-threatening anaphylactic episodes and/or organ damage, all of which contribute to a significant reduction in quality of life. TMS is focused on research that promotes the patient perspective, captures patient outcomes, and informs the scientific community of research priorities. Through these and additional efforts, TMS researchers collaborate with mast cell disease experts, other patient advocacy groups, and the mast cell disease patient community within the U.S. and globally.

The Research Fellow will work closely with the research committee and collaborators at academic institutions, pharma, and other organizations. The successful candidate will work with our diverse partners to gain new insights into mast cell diseases that will pave the way for improvements in quality of life. This exciting opportunity provides a platform for the qualified candidate to design and interpret patient surveys and to translate those findings into novel presentations and publications.

Interested candidates email cover letter, resume, references and salary expectations by March 30, 2022 to for consideration. 

Review Job Description

Development Coordinator Internship

We are seeking a part-time Development Coordinator to join our team!

Key responsibilities include:

  • Assisting the development team in special event planning and resource development for Spring
    and Fall 2022 events, including logistics planning and sponsorship requests.
  • Working with donor database to maintain and update donor records.
  • Communicating with constituents about organizational activities and events across multiple
  • Conducting research on current and potential donors, and third-party partnership

This internship is unpaid, benefits include a fun and engaging virtual office atmosphere and a recognition for tangible products
that will benefit the organization beyond 6 months. 

Email cover letter and resume to 


Community Engagement Internship

We are seeking a part-time Community Engagement Coordinator to join our team!

Key responsibilities include:

  • Coordinate and support in management of community-based projects and fundraising
  • Assist in calls, emails, and other communications
  • Identify and recruit volunteers for periodic activities, and develop and manage a volunteer database
  • Assist in managing calendars
  • Aid in research and development of project deliverables (i.e., community reports/action plans)
  • Assist with expense reports and client invoicing
  • Ad hoc project work including creative support, writing, marketing materials, and research

This internship is unpaid, benefits include a fun and engaging virtual office atmosphere and a recognition for tangible products
that will benefit the organization beyond 6 months. 

Email cover letter and resume to