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  The Mastocytosis Society P.O. Box 731, Brenham, TX 77834  
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October 21-24, 2010
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Mastocytosis Support Groups
 
|  Find a support group  |  How to form a support group  |  Upcoming meetings  |
 
Patient Contacts
 
Individuals have offered to be contact people for patients in their areas.
 
With the rapid growth of TMS it is our hope that through this list more support groups will be formed.
 
If there is no patient contact in your area, please contact a email board member.
 
Support Group Leaders
 
| A | - |C | - | I | - | K | - | M | N | - | P | - | S | T | U | V | W | - |
 
South Africa
Sandra Jansen
011 3309566 (w)
011 7605540 (h)
0833098559 (mobile/cell)
 
email jansens@sabc.co.za
Arkansas

Kristin Brown
 
email arkansassupport@tmsforacure.org
Australia
Kristin Romanis
0412 313 359
E-mail envelope kristinromanis@optusnet.com.au
 
Julie Paterson
Victoria, Australia
email patersonic@dcsi.net.au
 
Claire Ellis, creator of Mastocytosis in Australia Facebook group [http://www.facebook.com/home.php#/group.php?gid=50628755284]
 
Canada

Barry & Joan Laite
902-539-7732
 
Carrie D'Arville
519-680-3564
E-mail envelope cldarville@gmail.com
 
Canada Mastocytosis Support Forum: http://cmsadmin.proboards.com/
Colorado
Jan Marie Smith
303-241-9240
 
Rick Abrew
303-952-9042
 
E-mail envelope coloradosupport@tmsforacure.org
Illinois
Cheri Smith
618-444-6000
 
email illinoissupport@tmsforacure.org
Kansas
Pam Noah
913-299-3327
 
E-mail envelope kansassupport@tmsforacure.org
Michigan
Barbara Gittleman
248-545-7145
 
email michigansupport@tmsforacure.org
Midwest
Deborah Wallack
 
E-mail envelope midwestsupport@tmsforacure.org
Minnesota
Mishele Cunningham
952-905-6778
 
E-mail envelope minnesotasupport@tmsforacure.org
Missouri
VaLinda Dudenhoeffer
573-694-0476
 
Cheri Smith
618-444-6000
 
email missourisupport@tmsforacure.org
Nebraska
Jim and Betty McKee
 
email nebraskasupport@tmsforacure.org
New York (Central/Northern/Western)
Erin Cunia
Manlius, NY
315-682-0718
 
E-mail envelope newyorksupport@tmsforacure.org
 
Follow the CNY Mastocytosis Support Group on Twitter: twitter.com/cnymastosupport
 
You can also join the online CNY Mastocytosis Support Group at http://groups.google.com/group/cnymastosupport
North Carolina
Sharon Renfroe
Wanda Tesch
 
email northcarolinasupport@tmsforacure.org
Betty Kasper
Dennis Tomfohrde
Mishele Cunningham
 
E-mail envelope northcentralsupport@tmsforacure.org
Northeast
Rita Barlow
413-862-4556
 
E-mail envelope northeastsupport@tmsforacure.org
NYC-New Jersey
Len Margolis/Jody Bachiman
 
E-mail envelope nycnjsupport@tmsforacure.org
NY-Long Island
Michele Kress
631-944-2913
mqk02000@yahoo.com or
 
email longislandsupport@tmsforacure.org
Ohio
Brandy Daley
419-799-1975
 
E-mail envelope ohiosupport@tmsforacure.org
Pacific Northwest
Lisa Sterling
 
E-mail envelope pnwsupport@tmsforacure.org
Pennsylvania
Julie Fox
jfoxx@globalfit.com
 
Kathie Murphy
BMurphy375@AOL.COM
 
email pennsylvaniasupport@tmsforacure.org
Southeast
Patty Smith
 
E-mail envelope southeastsupport@tmsforacure.org
Southwest
Myra Hopper
520-575-1606
myrahopper@gmail.com
 
E-mail envelope southwestsupport@tmsforacure.org
 
Send a test E-mail to the South West Support Group address
Texas
Debi Loeffler
 
E-mail envelope texassupport@tmsforacure.org
United Kingdom

Irene Wilson
Telephone number (from within UK): 01506 431908
 
E-mail envelope winegums@blueyonder.co.uk
 
UK Mastocytosis Web site: http://www.ukmasto.co.uk/
Virginia
Kathleen Altherr
(757)477-5107
 
E-mail envelope virginiasupport@tmsforacure.org
Washington
See the newly started Pacific Northwest Group
 
E-mail envelope washingtonsupport@tmsforacure.org
 
 
 
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16th Annual Conference
October 21-24, 2010
Tucson, Arizona
(details
mastocytosis awareness ribbon
Check this out!
upcoming support group meetings
The Mastocytosis Society can benefit by your purchases through the folowing links:
iGive.com
iGive.com
Facebook Causes
The Story of
Winny Ninny Poo Poo

Story of WInny Ninny Poo Poo
GoodSearch: You Search...We Give!
yourcause.com
(formerly mycause.com)
We Look to You — Giovanni Lamanna CD
Please also check out our Online Store!
Contact our Fundraising Chair with any questions or suggestions
2010 National Organization Member
National Organization of Rare Diseases
InkHead Promotional Products
Thank you to inkhead for providing promotional products for our 2009 Conference
    Last updated 21-jul-10
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