Research


A Note from the Research Chair

Our TMS RESEARCH FUND supports the amazing work done by leading mast cell disorder researchers. Our TMS GENERAL FUND supports all other TMS initiatives and activities, including EDUCATION and SUPPORT of patients, caregivers and physicians, our ADVOCACY on Capitol Hill and our RESEARCH Committee work. Please consider donating to one or both of these vital funds.

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Hello Everyone! Welcome to the Research section of our new TMS website. I am thrilled to now have…

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Research News

All news

Rydapt© Approved for Advanced Systemic Mastocytosis Variants!

Apr 28, 2017

The Mastocytosis Society, Inc. is very excited to announce to our mast cell disorder community that the Food and Drug Administration (FDA) has approved Novartis’ drug, Rydapt©, (midostaurin, previously referred to as PKC412) for the treatment of advanced forms of…

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Single Vaccines: A Safer Option for Children with Mastocytosis

Apr 02, 2017

A Review of Parente R, Pucino V, Magliacane D, Petraroli A, Loffredo S, Marone G, et al.  Evaluation of vaccination safety in children with mastocytosis. Pediatr Allergy Immunol. 2017 Feb; 28(1):93–95. Available from http://onlinelibrary.wiley.com/doi/10.1111/pai.12647/pdf1 Pediatric vaccination is a topic rife…

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Research Committee updates

All activities

Nancy Russell, DrPH, Steps Down as Co-Chair of the Research Committee

Feb 01, 2017

Nancy C. Russell, Dr. PH (Doctor of Public Health), who has served as Co-Chair of The Mastocytosis Society (TMS) Research Committee and of the TMS Patient Survey Committee, has retired from The Mastocytosis Society as of January 1, 2017 after nine years of extraordinary service to our members. This is Dr. Russell’s most recent retirement, […]

2016 TMS Research Committee Activities

Jan 26, 2017

Below is a description of updates and progress made by The Mastocytosis Society (TMS) Research Committee during 2016. Major activities and initiatives are noted, but for a full list of activities in which the committee is involved, please see our Join the Research Committee section of this website. TMS Research Committee Co-Chair Steps Down After 8 […]

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Research grants

All grants

TMS Research Grant Awards: 2010 – 2017

Apr 02, 2017

The Mastocytosis Society, Inc. (TMS) awards grant funding for mastocytosis and mast cell activation syndrome (MCAS) research. Below is a list of our award recipients from recent years. This page will be updated as new publications or presentations related to TMS-funded research are identified. TMS thanks all of those listed below and previous awardees for […] Learn more

TMS Research Grant Offerings

Jan 01, 2017

Please check back to this site for future TMS Research Grant offerings. Learn more

Consensus Statements and WHO Updates

International Consensus Statements, Position Papers and WHO Criteria--Medical References

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ICD-10-CM Codes Update

TENTH EDITION  OF THE INTERNATIONAL CLASSIFICATION OF DISEASES - CLINICAL MANIFESTATION (ICD-10-CM) CODE SET FOR MAST CELL ACTIVATION SYNDROMES AND MASTOCYTOSIS

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US Network / Challenges Meetings

MAST CELL DISORDER CHALLENGES MEETINGS AND US NETWORK UPDATE

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Patient Surveys

PATIENT SURVEY INFORMATION AND UPDATES

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Patient Registries

Resources