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Pediatric Mastocytosis Fact Sheet

Prognosis

  • Benign course will be seen in eighty-percent of patients
  • There is no known progression in children from indolent systemic to progressive, more aggressive disease.
  • In a presentation by Dr. Melody Carter of the NIH/NIAID to TMS in 2006, she reported that all patients with systemic disease initially presented with systemic disease, and did not progress from cutaneous disease.
  • 15-30% of pediatric mastocytosis cases persist into adulthood.
  • Children with extensive bullous lesions appear to be at increased risk of shock or sudden death from anaphylaxis.

 
 
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