ICD-10-CM Codes Update for Mast Cell Activation Syndrome and Mastocytosis- February 2017

Feb 01, 2017

In October 2016, ICD-10-CM codes for Mast Cell Activation Syndrome (MCAS) were implemented!

(Please visit https://www.cdc.gov/nchs/icd/icd10cm.htm for more details.)

Background

In 2013 The Mastocytosis Society, Inc. (TMS), chaired by Valerie Slee, RN, BSN, and the American Academy of Allergy, Asthma and Immunology (AAAAI) Mast Cell Disorder (MCD) Committee, then chaired by Joseph Butterfield, MD, joined forces to help create medical codes for MCAS and update existing codes for Mastocytosis. The two organizations formed a subcommittee consisting of AAAAI MCD Committee and TMS Research Committee members, co-chaired by Arnold Kirshenbaum, MD, and Catherine Weiler, MD, PhD, for the MCD Committee, and Susan Jennings, PhD, and Nancy Russell, DrPH, for TMS, to work on the collaborative development of proposals for new and updated Tenth Edition International Classification of Diseases-Clinical Manifestation (ICD-10-CM) codes for mast cell disorders. A proposal to add MCAS codes to ICD-10-CM was jointly submitted to the National Center for Health Statistics (NCHS; housed at the Center for Disease Control and Prevention) in January 2014 and a second proposal, focused on modification and expansion of existing Mastocytosis ICD-10-CM codes, was jointly submitted to the NCHS in July 2014. Both proposals were also co-sponsored and approved by the AAAAI Board of Directors. The MCAS ICD-10-CM proposal was presented at the March 19-20, 2014 ICD-10 Coordination and Maintenance Committee (CMC) Meeting of the Centers for Disease Control and Prevention. The Mastocytosis ICD-10-CM proposal was presented at the September 23-24, 2014 ICD-10 CMC Meeting. Currently, codes for mastocytosis remain unchanged.

MCAS and Mastocytosis ICD-10-CM Subcommittee Members

Joseph Butterfield, MD, Co-Director of the Mayo Clinic Center of Excellence for Mast Cell and Eosinophil Disorders; Chair, AAAAI Mast Cell Disorders Committee

Arnold Kirshenbaum, MD, Co-Chair, MCAS and Mastocytosis ICD-10-CM Subcommittee (MCD Committee)

Catherine Weiler, MD, PhD, Co-Director of the Mayo Clinic Center of Excellence for Mast Cell and Eosinophil Disorders; Co-Chair, MCAS and Mastocytosis ICD-10-CM Subcommittee (MCD Committee)

Cem Akin, MD, PhD, Director of the Mastocytosis Center of Excellence at Brigham and Women’s Hospital and Dana-Farber Cancer Institute

Dr. Mariana Castells, MD, PhD, Associate Director of the Mastocytosis Center of Excellence at Brigham and Women’s Hospital and Dana-Farber Cancer Institute

Susan Jennings, PhD, Co-Chair, Research Committee, The Mastocytosis Society, Inc.; Co-Chair, MCAS and Mastocytosis ICD-10-CM Subcommittee (TMS)

Nancy Russell, Dr. PH, Co-Chair, Research Committee, The Mastocytosis Society, Inc.; Co-Chair, MCAS and Mastocytosis ICD-10-CM Subcommittee (TMS)

Valerie Slee, RN, BSN, Chair, Board of Directors and Board of Directors Liaison to the Research Committee, The Mastocytosis Society, Inc.

Mishele Cunningham, RN, BSN, PHN, Chair, Education Committee, The Mastocytosis Society, Inc.