Community

We are connected by love, desire, and our mission to find a cure for this disease. Our Community is what unites us and provides us the opportunity to embrace and support each other. Join Us.

TMS heroes

Our heroes come from all walks of life. They are caregivers, doctors, nurses, pediatricians, allergists, family members and of course our individuals suffering from mast cell disorders. The journey each one of us takes is unique and often difficult but in sharing, we all gain.  If you are interested in sharing your story please email us at stories@tmsforacure.org

  • Princess Among Soldiers

    Patient Heroes

    Article By Pam Hodge I have cried a million tears and asked why a million times, never to get the answer.  At times I have just held on because that is all I could do. I thought at times our family would crumble because of lack of support. I have gone through the stages of […] Full story
  • Catherine Weiler MD PhD

    TMS Hero

    Dr. Catherine Weiler’s career has been dedicated to the treatment and study of allergy, immunology and mast cell disorders. She has been in the Division of Allergy at the Mayo Clinic in Rochester, MN since 1998, is currently the Co-Director of Mayo Program for Mast Cell and Eosinophilic Disorders and will be the incoming Chair […] Full story
  • Wyatt the Warrior

    Young Hero

    As a mother, nothing can prepare you for moments of darkness. When you have a baby, you pray for all good things… all good moments. You expect light. One thing our youngest son Wyatt has taught us is that, despite all dark moments, light will always prevail. When Wyatt was born, I immediately knew something […] Full story
  • Patricia Beggiato

    Caregiver

    Never in my wildest thoughts did I imagine my current role as care provider to my husband. For years leading up to 2010 our lives were pretty typical. Two daughters in school, a restaurant that we owned and managed and a family filled with love and joy. Leading up to that time, Fabio was extremely […] Full story

TMS Speaks

Insights from The Mastocytosis Society, members and greater community.

  • Helpful hints for living with the symptoms of mast cell disorders

    “Proper self-care is not a luxury. It is as necessary to my disease management as my meds.” Helpful hints for living with the symptoms of mast cell disorders shared by patients living with these disorders: Overall Stability Being Prepared Medical Alert Jewelry and Devices Eating at home and outside of the home Bone Pain Fatigue […] Full story
  • Rare Disease Month – Get involved and help Raise Awareness!

    The definition of a rare disease differs by geographic region, and is defined as one that affects less than 200,000 people in the United States, and less than 1 in 2000 people in Europe. Currently, according to the National Organization for Rare Disorders (NORD), there are approximately 7000 rare diseases identified here in the US. […] Full story

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