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October 21-24, 2010
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  The Mastocytosis Society Volunteers
   
 

Volunteer Spotlight

Stephanie has been a member of TMS since 1997 and volunteer since 2006 completing the state filings and mailing out informational and new member packets. She feels that the time has come for her to take on a bigger role in the actual workings of the Society, as a Board Member. “TMS has given me the support I needed through the years, via the newsletter, website, forums; and now it is time to ‘pay forward’ and do what I can to enable the continuing growth & success of TMS.”

Stephanie started her work career as a CMA/office manager in the medical field, progressed to the health insurance field as a roving customer service representative, and continued on to a non-profit hospital, in the Risk Management Office handling the state filing, casualty and malpractice ins. She had been licensed in life, health, accident, casualty, & Series 7 in PA.

Along with her husband George, retired & sold everything and left PA in 2007 traveling & living in their RV. They now own a home and have a permanent address in Truth or Consequences, NM. George, a retired machinist, now a newbie bridge player also volunteers for the senior center delivering meals. Hobbies enjoyed by Stephanie include traveling by RV, photography, maintaining their desert landscape, taking care of their masto dog (Lady, a Shar Pei), and reading fiction when those mast cells degranulate.

Stephanie was diagnosed in 1997 with Indolent Systemic Mastocytosis, affecting her digestive, respiratory and skin systems.

  Erin Cunia
     
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  TMS Board of Directors
   
 
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  Chairman   Vice Chair   Treasurer      
  Valerie Slee   Jody Bachiman   Wanda Hermann      
  Valerie Slee, RN, B.S.N.   Jody Bachiman   Wanda Hermann      
           
                 
  Secretary              
  Regina Rentz   Lisa Sterling   Erin Cunia      
  Regina Rentz   Lisa Sterling   Erin Cunia, M.S.      
           
                 
                 
  Stephanie Shaw              
  Stephanie Shaw              
               
                 
  There are 15 Board of Director positions. Please contact the board if you are interested in a volunteer position.  
  Contact the entire Board of Directors: E-mail tmsbod@tmsforacure.org  
   
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  TMS Committees
   
 

Mastocytosis Chronicles Committee
 
Lisa Sterling, Editor/Chair
 
Send articles for the Chronicles or to help the committee, please contact the committee E-mail chronicles@tmsforacure.org

Media Relations Committee
 
Lisa Sterling, Chair
 
To help with media relations, contact the committee E-mail mediarelations@tmsforacure.org
 
     
 

Research Committee
 
Nancy Russel, Ph.D., Co-Chair
David Mayne, D.-Bio-tech, MA, Co-Chair
 
Any individuals interested in serving on the Research Comiittee, please contact the committee E-mail research@tmsforacure.org

Web site/Technology Committee
 
Erin Cunia, Chair
 
Any individuals interested in serving on the Web site/Technology Comiittee, please contact the committee E-mail webcomm@tmsforacure.org
 
To make a Web change & project request, please fill out the form [here].
     
 

Pediatric Committee
 
Kolleen Barlow, Chair
 
To help with pediatric mastocytosis, contact the committee E-mail pediatrics@tmsforacure.org

Membership Committee
 
Stephanie Shaw, Chair
 
To help with membership, contact the committee E-mail membership@tmsforacure.org
     
 

Support Group Committee
 
Rita Barlow, Chair
 
To help organize support groups, contact the committee E-mail supportgroups@tmsforacure.org

Conference Planning Committee
 
Myra & David Hopper, Hosts
 
To help plan the annual conference, contact the committee E-mail conference@tmsforacure.org
 
To help with the walk-a-thon, contact the committee E-mail walkathon@tmsforacure.org
     
 

Strategic Planning Committee
 
Jodylynn Bachiman, Chair
 
To help with strategic planning, contact the committee E-mail strategicplanning@tmsforacure.org

Fundraising Committee
 
Connie Futrell, Chair
Lisa Sterling, Board liaison
 
To help with fundraising, contact the committee E-mail fundraising@tmsforacure.org or cfutrell@tmsforacure.org
     
 

Finance Committee
 
Wanda Hermann, Chair
 
To help with strategic planning, contact the committee E-mail finance@tmsforacure.org
 
Finance Reports

International Relations Committee
 
Vacant, Chair
 
To help with international relations, contact the committee E-mail international@tmsforacure.org
     
 
 
 
 
 
 
 
     
   
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16th Annual Conference
October 21-24, 2010
Tucson, Arizona
(details

mastocytosis awareness ribbon
Check this out!
upcoming support group meetings

The Mastocytosis Society can benefit by your purchases through the folowing links:
iGive.com
iGive.com
Facebook Causes
The Story of
Winny Ninny Poo Poo


Story of WInny Ninny Poo Poo
GoodSearch: You Search...We Give!
yourcause.com
(formerly mycause.com)
We Look to You — Giovanni Lamanna CD
Please also check out our Online Store!
Contact our Fundraising Chair with any questions or suggestions
2010 National Organization Member
National Organization of Rare Diseases


InkHead Promotional Products
Thank you to inkhead for providing promotional products for our 2009 Conference
   
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