Welcome to the new Web site for The Mastocytosis Society.

Please make note of our NEW mailing address:
THE MASTOCYTOSIS SOCIETY
P.O. BOX 731
BRENHAM, TEXAS 77834

If you are looking for information from the old site, you may find it here, but it is no longer being updated, so some information may not be current.

Please do keep in mind, I am one person, I am a volunteer, and I also have mastocytosis. This is a work in progress. Thanks for your patience!
--Erin Cunia, Webmaster

Needed: Chair, Research Advisory Committee Valerie M. Slee has been acting as Chair of the Research Advisory Committee since last summer when the position was vacated, in addition to her other roles. We are looking for a new Research Advisory Chair. Candidates should have a background in a medical field, nursing, or biological sciences, be competent in writing articles with references, and in doing literature reviews.The candidate must be able to interact with current and potential members by phone and email in a courteous and positive manner, and will moderate the TMS email list. In addition, the candidate must be available to attend the TMS annual meeting each year in the fall, and must also be available to attend the AAAAI meeting each year in March and assume specific responsibilities for each of those meetings. The Chair will interact with members of the research community and the Medical Advisory Board, and will report to the Liaison of the Medical Advisory Board, Valerie M. Slee. This position represents a great opportunity to the individual with the right background, who enjoys interacting with others on a daily basis, and who would like to contribute his or her skills to fight for a cure for mast cell disorders.

Please send your CV/resume for consideration to Valerie M. Slee, Vice Chair, Acting Chair, Research, vicechairman@tmsforacure.org

• find a support group in your area (more)
• find a support meeting (more)
• check-out our new support groups
  calendar (more)

Check out these sites and services:

Free Emergency Medical ID Wallet Card (Web), American Medical ID (Web), Identify Yourself - Universal Medical ID (Web), Lifeline (Web), MedicAlert® (Web), MedicTag (USB) (Web), Free Online Medical Registry (Web), Rescue Alert (Web)

URGENT! Parents of children with mast cell disorders. We need volunteers! Volunteers are needed to work our TMS booth at the American Academy of Pediatrics (AAP) conference. Please immediately contact: Valerie Slee -

TMS Video on Mast Cell Activation Symptomatology TMS is actively seeking funding to translate the TMS video on MAst Cell activation Symptomatology into Spanish. Dr. Mariana Castells has asked that we translate the video as soon as possible. to that end, we have begun meeting with a translator, and asking for proposals for the project. We will be seeking grant funding to translate this, and other critical TMS literature for patients, caregivers and physicians, into Spanish. If you would like to contribute specifically to this endeavor, please send a check to "The Mastocytosis Society" and designate that it is for Spanish translation. In the future, we may be seeking funding to translate the DVD into other languages. Valerie M. Slee

Important information about anesthesia (more)

Dr. Castells Emergency Plan for Systemic Mastocytosis, Mast Cell Activation, and Anaphylaxis (PDF)