The Mastocytosis Society is a 501(c)(3) non-profit organization dedicated to helping patients, caregivers and health care professionals understand mast cell disorders — what they are, where to get treatment for them, and the impact they have on patient’s lives.
Annual Conference
The Mastocytosis Society (TMS) holds an annual conference meeting. The 2008 Annual Meeting will be located at the Hilton Minneapolis/Bloomington Hotel, The conference, organized and hosted by the Minnesota and North Central support groups, will begin Thursday evening, October 16, 2008, with the 2nd Annual TMS Walk-a-thon, and will conclude Sunday morning, October 19, 2008. 2008 TMS Conference ProgramThis is the schedule of events so far. Please note, this is subject to change. We are working very hard to make this an eventful conference for those that attend. [MS Word DOC] [Adobe PDF] [Adobe Acrobat Reader FREE Download] [Last updated 25-sep-08] 2008 TMS Conference Planning in Full Swing (June 21, 2008) Conference Chair Mishele Cunningham reports that members of the Minnesota and North Central Support groups are hard at work putting together a terrific program for this fall's TMS gathering. More |
2nd Annual Walk-a-thonHelp us...help you...find a cure for mast cell disease! Walk-a-thon information [HERE] or Register for the 2008 Annual Conference Meeting [HERE] (June 19, 2008, Corrected 6/27/08) Use this form to register by mail for the 2008 TMS Annual Conference, which will be held this year in West Bloomington, Minnesota, hosted by the Minnesota and North Central Support Groups. If you register before September 1, 2008, you will automatically be entered in the Early Bird Drawing for free admission to this year's (2008 Minnesota) conference. More |
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NEWS
Disability Committee Update (June 20, 2008) Still recovering from a major computer meltdown, Patti Hibb's e-mail address has changed. More Novartis trial for PKC412 
(April 23, 2008) We received a call today from Leslie Fields, the Patient Advocate from Novartis, who is working to coordinate the opening of the study for PKC412 (Midostaurin), a new drug for aggressive mastocytosis. We have some details, although not all of them, but we wanted to share what we know for those of you who are anxiously waiting for information. More GIOVANNI LAMANNA CD
FEATURED LINKS» TMS Partners with American Medical ID — More» Dr. Cem Akin Named Top Doc — More» Seeking Children with Austism — More» Support TMS: Become a Member! — MoreMastocytosis and Mast Cell Activation Disorders Defined
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SUPPORT GROUP MEETINGS
Texas: Sat., Oct. 25, 2008 Find a Support Group...BOARD NEWSAAAAI Mast Cell Task Force Meets 
(April 23, 2008) I was honored to be the TMS representative to the Task Force Meeting on Mast Cell Disorders at the American Academy of Allergy, Asthma and Immunology Meeting in Philadelphia, Pennsylvania, on Saturday, March 15, 2008. The first topic discussed was the European Competency Network for Mastocytosis (ECNM), which met in Paris in November and is interested in collaborating on a meeting to revise the existing criteria for Systemic Mastocytosis within the next year or two. More Learn More about The Mastocytosis Society
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