The Mastocytosis Society is a 501(c)(3) non-profit organization dedicated to helping patients, caregivers and health care professionals understand mast cell disorders — what they are, where to get treatment for them, and the impact they have on patient’s lives.
2008 TMS Conference ProgramORDER DVDs You can order DVDs of the conferences in 2004--2008. Conference programs are also available for order from 2007 & 2008. This is the schedule of events so far. Please note, this is subject to change. We are working very hard to make this an eventful conference for those that attend. [MS Word DOC] [Adobe PDF] [Adobe Acrobat Reader FREE Download] [Last updated 25-sep-08 |
2nd Annual Walk-a-thonHelp us...help you...find a cure for mast cell disease! Thank you to all the participants, walkers, donors, and a special thank you to the organizers! |
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NEWS
Disability Committee Update (June 20, 2008) Still recovering from a major computer meltdown, Patti Hibb's e-mail address has changed. More Novartis trial for PKC412 
(April 23, 2008) We received a call today from Leslie Fields, the Patient Advocate from Novartis, who is working to coordinate the opening of the study for PKC412 (Midostaurin), a new drug for aggressive mastocytosis. We have some details, although not all of them, but we wanted to share what we know for those of you who are anxiously waiting for information. More GIOVANNI LAMANNA CD
FEATURED LINKS» TMS Partners with American Medical ID — More» Dr. Cem Akin Named Top Doc — More» Seeking Children with Austism — More» Support TMS: Become a Member! — MoreMastocytosis and Mast Cell Activation Disorders Defined
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SUPPORT GROUP MEETINGS
Texas: Sat., Oct. 25, 2008 Find a Support Group...BOARD NEWSAAAAI Mast Cell Task Force Meets 
(April 23, 2008) I was honored to be the TMS representative to the Task Force Meeting on Mast Cell Disorders at the American Academy of Allergy, Asthma and Immunology Meeting in Philadelphia, Pennsylvania, on Saturday, March 15, 2008. The first topic discussed was the European Competency Network for Mastocytosis (ECNM), which met in Paris in November and is interested in collaborating on a meeting to revise the existing criteria for Systemic Mastocytosis within the next year or two. More Learn More about The Mastocytosis Society
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